Publications 2018
Articles
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Dupras C, Saulnier KM, Joly Y, ‘’Epigenetics, ethics, law and society: A multidisciplinary review of descriptive, instrumental, dialectical and reflexive analyses’’, 49:5 (2019) Social Studies of Science, 785-810.
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Song L, and Joly Y, "Revisit genetic discrimination: ELSI considerations", (2018) Journal of Science-Technology and Law, (4), ISSN1003-9945 Chinese: 宋凌巧、Yann Joly. 重新审视“基因歧视”：关于伦理 、法律、社会问题的思考 [J]. 法律与科技, (4), ISSN1003-9945.
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Knoppers BM, Joly Y, "Introduction: the why and whither of genomic data sharing", 137:8 (2018) Human Genetics, 569-574.
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Kim H, Yoon Kim S, Joly Y, "South Korea: in the midst of a privacy reform centered on data sharing", 137:8 (2018) Human Genetics, 627-635.
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Issa AM, Thorogood A, Joly Y, Knoppers BM, "FDA Tinkering with Evidentiary Standards for Precision Medicine: A New Era for Clinical Research and Regulation?" (2018) Genetics in Medicine (Accepted for publication).
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Bertier G, Cambon-Thomsen A, Joly Y, ‘‘Is it research or is it clinical? Revisiting an old frontier through the lens of Next-Generation Sequencing technologies’’ (2018) European Journal of Medical Genetics, 1-8.
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Ngueng Feze I, [...] Joly Y, “For the Safety of Fresh Produce: Regulatory Considerations for Canada on the Use of Whole Genome Sequencing to Subtype Salmonella’’ 2:21 (2018) Frontiers in Sustainable Food Systems 1-11.
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Dupras C, Song L, Saulnier KM, Joly Y, "Epigenetic Discrimination: Emerging Applications of Epigenetics Pointing to the Limitations of Policies Against Genetic Discrimination" (2018) 9 Frontiers in Genetics 1-6.
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Bertier G, Joly Y, "Clinical exome sequencing in France and Quebec: what are the challenges? What does the future hold?" 14:17 (2018) Life Sciences, Society and Policy, 1-19.
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Saulnier K, Dyke S, Joly Y, "Benefits and Barriers of Design, Implementation, and Compliance in the International Harmonization of Data Access Agreements" 6:297 (2019) Scientific Data 1-6.
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Capps B, Mulvihill JJ, Joly Y, Lysaght T, & The Human Genome Organisation (HUGO) Committee on Ethics, Law, and Society (CELS), “The View of CRISPR Patents Through the Lens of Solidarity and the Public Good”, 18:12 (2018) The American Journal of Bioethics, 54-56.
Chapitre de livres
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Pinkesz M, Joly Y, “The Governance Framework of North American Biobanks: A Rapidly Evolving Policy Patchwork”. In Xavier Bios et Anna Pigeon Eds. Public Regulation of Tumor Banks, France: Springer International, 2018 , 141-164.
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Pinkesz M, Joly Y, "Gouvernance des Tumorothèques: Tendances Internationales'' dans Xavier Bios et Anna Pigeon Eds. Régulation publique des centres de ressources biologiques en cancérologie, 2017 (Les études hospitalières, à paraitre).
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Zawati MH, Joly Y, Knoppers BM. ''L'autonomie basée sur l'individualisme libéral: les limites dans le contexte des biobanques populationnelles''. In Mélanges pour Christian Hervé, 2018, 279-293.
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Joly Y, Pinkesz M, Saulnier K.M., “Sharing data to improve the health of Canadians: What are the stakes?” In Health Law at the Frontiers 2nd ed.; Eds. Lara Khoury & Catherine Régis, 2018, 173-199.
Rapports et autres publications