Publications 2020
Articles
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Nicol D, Joly Y, Kaye J, Knoppers BM, Meslin EM, Nielsen J, Otlowski M, Warner K, "Don Chalmers: His Contributions to Legal Research and Education, Health Law, and Research Ethics, Locally and Globally" 28:1 (2020) Journal of Law and Medicine, 289-297.
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Cleophat J, Pelletier S, Déry A, Joly Y, Gagnon P, Marin A, Chiquette J, Gagnon B, Roy L, Bitzas V, Nabi H, Dorval M, “Survey of palliative care providers’ needs, perceived roles, and ethical concerns about addressing cancer family history at the end of life” (2020) Palliative & Supportive Care (Published online).
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Song L, Joly Y, “After He Jiankui: Chinese Regulatory Reforms on Biotechnology” (2021) Medical Law International, 1-18.
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So D, Joly Y, Sladek R, “Perceived Effects of Human Germline Gene Editing on Personal and Social Identity” (2021) AJOB Empirical Bioethics (Submitted).
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Dupras C, Joly Y, Rial-Sebbag E, ‘‘Human Rights in the Postgenomic Era: Challenges and Opportunities Arising with Epigenetics’’ 59:1 (2020) Social Science Information, 12-34.
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Dupras C, Hagan J, Joly Y, “Overcoming Biases Together: Normative Stakes of Interdisciplinarity in Bioethics” 11:1 (2020) American Journal of Empirical Bioethics (AJOB), 20-23.
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Joly Y, Dalpé G, Dupras C, et al. ‘‘Establishing the First International Genetic Discrimination Observatory’’ (2020) Nature Genetics, Published ahead of print.
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Dupras C, Beauchamp E, Joly Y, ‘‘Selling direct-to-consumer epigenetic tests: are we ready?’’ (2020) Nature Reviews Genetics.
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Granados Moreno P, Joly Y, Roskams-Edris D, “Could Open Be The Yellow Brick Road to Innovation in Genomics in North America?” 13:1 (2020) McGill Journal of Law and Health, 117-180.
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Phillips M, Molnár-Gábor F, Korbel JO, Thorogood A, Joly Y, Chalmers D, Townend D, Knoppers BM, “Genomics: data sharing needs an international code of conduct” 578:7793 (2020) Nature, 31-33.
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Campbell PJ, Getz G, Korbel JO, et al. (including Joly Y.), The ICGC/TCGA Pan-Cancer Analysis of Whole Genomes Consortium, “Pan-cancer analysis of whole genomes” 578:1 (2020) Nature, 82-93.
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Joly Y, Dupras C, Pinkesz M, Tovino SA, Rothstein MA, “Looking Beyond GINA: Policy Approaches to Address Genetic Discrimination” 21:2 (2020) Annual Review of Genomics and Human Genetics, 2.1-2.17.
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Saulnier K, Gallois H, Joly Y, "Prenatal Genetic Testing for Intersex Conditions
in Canada" 43:4 (2021) Journal of Obstetrics and Gynaecology Canada, 369-
371.
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Knoppers BM, Beauvais MJS, Joly Y, Zawati MH, "Modelling Consent in the Time of COVID-19" (2020) Journal of Law and the Biosciences (Accepted).
Chapitre de livres
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Joly Y, Avard D, ‘’Pharmacogenomics: Ethical, Legal, and Social Issues’’ In The Road from Nanomedicine to Precision Medicine, volume 4 of the Pan Stanford series on Nanomedicine Bawa, Mousa & Audette eds. (Jenny Standford Publishing, 2020) 791-817.
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Joly Y, Marrocco G, “Regulating the Use of Genetic Testing by Insurers and Employers in the Province of Quebec: Is the Genetic Non-Discrimination Act Really Necessary?” In Khoury L, Blackett A and Vanhonnaeker L, Genetic Testing and the Governance of Risk in the Contemporary Economy (Springer), 2020, 269-292.
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Gallois H, Joly, Y, Gautrais V, “Invigorating the Principles of Consent and Data Privacy in the Medical Field through Gamification and Genome Donation” In Herveg J, Deep Diving into Data Protection, 1979-2019: Celebrating 40 Years of Privacy and Data Protection at the CRIDS, Bruxelles, Larcier, 2021, 409-432.
Rapports et autres publications