Publications 2016
Peer Reviewed Articles
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Dalpé G, et al. […]Joly Y), “The Gatekeeping Function in Personalized Medicine Initiatives” 15:2 (2017)Current Pharmacogenetics and Personalized Medicine, 1-12 .
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Granados Moreno, P., Joly, Y., "Consent Practices in International Biobanking and Genomic Databases: Is Broad Consent an Option?" European Journal of Health Law.
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Stoddart, J., Chan, B., Joly, Y., "The European Union's Adequacy Approach to Privacy and International Data Sharing in Health Research" Journal of Law Medicine and Ethics.
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Joly Y, Dyke SOM, Knoppers BM, Pastinen T, “Are Data Sharing and Privacy Protection Mutually Exclusive?” 167:5 (2016) Cell, 1150-1154.
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Stunnenberg HG, The International Human Epigenome Consortium (including Joly Y), Hirst M, “The International Human Epigenome Consortium: A Blueprint for Scientific Collaboration and Discovery” 167:5 (2016) Cell, 1145-1149.
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Saulnier K, Joly Y, “Locating Biobanks in the Canadian Privacy Maze” 44:1 (2016) Journal of Law Medicine and Ethics, 7-19.
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Bertier G, Zhang JC, Ragoussis V, Joly Y, “Integrating Precision Cancer Medicine into healthcare – policy, practice and research challenges” 8:108 (2016) Genome Medicine, 1-12.
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Jean-Guillaume Emond-Rheault, [,,,] Joly Y. et al. ‘’A Syst-OMICS Approach to Ensuring Food Safety and Reducing the Economic Burden of Salmonellosis’’ 1:8 (2017) Frontiers in Microbiology, 1-8.
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Dyke SOM, Saulnier K, Pastinen T, Bourque G, Joly Y, “Evolving Data Access Policy: the Canadian Context” 1 (2016) FACETS, 138-147.
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Murdoch B, Ravitsky V, Ogbogu U, Ali-Khan S, Bertier G, Birko S, Bubela T, De Beer J, Dupras C, Ellis M, Granados Moreno P, Joly Y, Kamenova K, Master Z, Marcon A, Paulden M, Rousseau F, Caulfield T, “Non-Invasive Prenatal Testing and the Unveiling of an Impaired Translation Process” (2016) Journal of Obstetrics and Gynaecology Canada, 1-8, DOI: 10.1016/j.jogc.
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Bertier G, Hétu M, Joly Y, “Unsolved challenges of clinical whole-exome sequencing: A systematic literature review of end-users' views” 9:52 (2016) BMC Medical Genomics, 1-12.
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Saulnier K, So D, Joly Y, “Teaching to the Test” 3:2 (2016) Journal of Law and the Biosciences, 373-376.
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Salman S, Ngueng Feze I, Joly Y, “Disclosure of Insurability Risks in Research and Clinical Consent Forms” 27:1 (2016) Journal of Global Bioethics, 38-49.
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Joly Y, Salman S, Ngueng Feze I, Granados Moreno P, Stanton-Jean M, Lacey J, Labelle M, Dench J, Dove ES, Atak I, Bellefleur C, Heinemann T, Langlais H, Love R, "DNA Testing for Family Reunification in Canada: Points to Consider" (2016) Journal of International Migration and Integration Advance online publication, 1-14, DOI:10.1007/s12134-016-0496-7.
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Joly Y, et al. “Analysis of five years of controlled access and data sharing compliance at the International Cancer Genome Consortium” 48:3 (2016) Nature Genetics, 224-225.
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Joly, Y. et al., "A flexible tool to facilitate the review of quality assurance activities undertaken in the context of biomedical research on humans" European Journal of Human Genetics.
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Ngueng Feze, I., Prystajecky, N., [...] Joly, Y., “The regulation of novel water quality assessment biotechnologies: Is Canada ready to ride the next wave?” 26:3 (2014) Journal of Environmental Law and Practice 201-248.
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Thorogood, A., Joly, Y., et al., “An Implementation Framework for the Feedback of Individual Research Results and Incidental Findings in Research”15:88 (2014) BioMed Central Medical Ethics 1-13.
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Granados Moreno P, Joly Y, “Informed consent in international normative texts and biobanking policies seeking the boundaries of broad consent” 15:4 (2016) Medical Law International, 216-245.
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Bertier, G., Zawati, M.H., Joly, Y., “The Role of Whole Genome and Whole Exome Sequencing in Preventive Genomic Sequencing Programs” 15:7 (2015) American Journal of Bioethics 22-24.
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Dyke, Stephanie O.M., Cheung, W.A., Joly, Y., et al., “Epigenome data release: a participant-centered approach to privacy protection” 16:142 (2015) doi:10.1186/s13059-015-0723-0 Genome Biology 1-12.
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Salman, S., Ngueng-Feze, S., Joly, Y., “Divulgation de l’information génétique en assurances” 93:2 (2015) The Canadian Bar Review 501-536.
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Shabani, M., Dyke, S.O.M., Joly, Y., Borry, P., "Controlled access under review: improving the functioning of Data Access Committees" PLOS Biology.
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Dove ES, Thorogood A, Joly Y, Simkevitz H, Phillips M, "Protecting the Privacy of Canadians' Health Information in the Cloud" 14 (2016) Canadian Journal of Law and Technology, 173-213.
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Joly, Y., So, D., Saulnier, K., Dyke, S.O.M., "Epigenetics ELSI: Darker than you Think?" Trends in Genetics.
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Joly, Y., et al., "Five Years of Controlled Access at ICGC: Building a Key to the Data Sharing Highway" Nature Genetics.
Reports and other publications