Publications 2023

Articles

• Rothstein M,  […] Joly Y, et al. “Concordance of International Regulation of Pediatric Health Research” 260:113524 (2023) The Journal of Pediatrics, 1-10.  DOI 10.1016/j.jpeds.2023.113524PMID 37245625
• Knoppers BM, Chase S, Joly Y, Zawati M and Thorogood A, “Responsible Processing and Sharing of Genomic Data: Bringing Health Technologies Industries to the Table”, 23:11(2023) The American Journal of Bioethics, 33-35.  DOI 10.1080/15265161.2023.2256254PMID 37879015
• Dauge A, Joly Y, et al. “General medical practitioners acting as geneticists, a risky business?” 28:1 (2023) Lex Electronica, 152-171 
• Moreno P.G, Knoppers T, Zawati MH, Lang M, Knoppers B.M, Wolfson M, Nabi H, Dorval M, Simard J. and Joly Y, “Regulating cancer risk prediction: legal considerations and stakeholder perspectives on the Canadian context” (2023) Human Genetics.  DOI 10.1007/s00439-023-02576-8PMID 37365297
• Huerne K, Jackson SS, Lall R, Palmour N, Berner AM, Dupras C, Joly Y. “Studies in Cancer Epigenetics through a Sex and Gendered Lens: A Comprehensive Scoping Review”  15: 4207 (2023) Cancers.  DOI 10.3390/cancers15174207
• Puscas M, […] Joly Y, et al. “Rare diseases and space health: optimizing synergies from scientific questions to care” 8:58(2022) npj Microgravity, 1-10.  DOI https://doi.org/10.1038/s41526-022-00224-5PMID 36550172

Chapitre de livres

• Joly Y, Avard D, ‘’Pharmacogenomics: Ethical, Legal, and Social Issues’’ In The Road from Nanomedicine to Precision Medicine, volume 4 of the Pan Stanford series on Nanomedicine, Mousa SA, Bawa R, Audette GF, eds. (Jenny Standford Publishing), 2020, 791-828. 

Rapports et autres publications

• Joly Y, “Genetic Discrimination and the Ghost Of Future Past” 360info, 28 February 2023
• D’Amato M.E., Joly Y, Lynch V, Machado H, Scudder N, Zieger M, ‘’Ethical Considerations for Forensic Genetic Frequency Databases’’, First Report By The Forensic Databases Advisory Board (FDAB), 2023.  PDF
• REWS (including Y. Joly), “Framework for Involving and Engaging Participants, Patients and Publics in Genomics Research and Health Implementation” (2021)  PDF
• REWS DACReS working group (including Y. Joly), “Data Access Committee Review Standards (DACReS) Policy” (2021)  PDF
• REWS “Genetic Discrimination working group (including Y. Joly), Genetic Discrimination: Implications for Data Sharing Projects” (GeDI) (2022)  PDF
• Joly Y, “Global Governance of Genomic Data: A Dynamic Ecosystem to Promote the Development of Precision Medicine” (2022) The Canadian Science Policy Magazine.