Reports and other publications

• Joly Y, “La Loi S-201 visant à interdire et à prévenir la discrimination génétique : contexte et positionnement stratégique à la lumière des autres approches internationales (2018)”, Expert Report for the Ministry of Justice, Government of Canada.
• Liu H, Kondrup E, Joly Y, “The Ethical Issues Associated with the Use of Genetic Ancestry in Genomics Research: A Mixed-Methods Systematic Literature Review” (2024)
• Uberoi D, Y Joly,  “Canada’s Genetic Non-Discrimination Act has only had a limited impact on the use of genetic information by Canadian life insurers” (2024) The Conversation, 20  Feb 2024 
• Knoppers BM, Chase S, Joly Y, Zawati M.H, Thorogood A, “International Genomic Data Sharing by Health Technologies Industries: Points to Consider”. (2023), Zenodo
• Joly Y, “Genetic Discrimination and the Ghost Of Future Past” 360info, 28 February 2023
• REWS (including Y. Joly), “Framework for Involving and Engaging Participants, Patients and Publics in Genomics Research and Health Implementation” (2021)  PDF
• REWS DACReS working group (including Y. Joly), “Data Access Committee Review Standards (DACReS) Policy” (2021)  PDF
• REWS “Genetic Discrimination working group (including Y. Joly), Genetic Discrimination: Implications for Data Sharing Projects” (GeDI) (2022)  PDF
• Joly Y, “Global Governance of Genomic Data: A Dynamic Ecosystem to Promote the Development of Precision Medicine” (2022) The Canadian Science Policy Magazine. 
• Anya E R, P, Dalpé G, and Joly Y, “The Genetic Discrimination Observatory: A Key Global Resource in Addressing Genetic Discrimination.” Accessed 15 December 2022. 
• Dalpé G, Cheung K, and Joly Y, “Opportunities and challenges of using epigenetic technologies in defence and security contexts”, Mobilizing Insights in Defence and Security (MINDS), Montreal, Canada: Department of National Defence, 5 April 2022. PDF
• Faraji SE, Liu H, Dauge A, Kaiser B, Granados-Moreno P. & Joly Y, ‘’A Comparative Review of Data Sharing Regulations and Practices in Four Jurisdictions (Australia, France, United Kingdom, United States)’’ CanCOGeN project, Genome Canada, 4 April 2022. 
• M.E. D’Amato, Y. Joly, V. Lynch, H. Machado, N. Scudder, M. Zieger, ‘’Ethical Recommendations for Forensic Genetic Frequency Databases’’ 2022
• Joly Y, Liu H., and Ma’n Z, on behalf of the CanCoGeN Data Sharing Group, “CanCOGeN Pan-Canadian Experience in Data Sharing: Lessons Learned and Recommendations for the Road Ahead”, Genome Canada, Ottawa, 2022.
• Bernier A, Liu H, McDougall R, Joly Y, “Law and Policy of Public Health Information Sharing in Canada” (2021) A Report to the Public Health Agency of Canada, Centre of Genomics and Policy, Montreal, Canada, 102.
• Murtagh MJ, Machirori M,  Gaff CL, Blell MT, de Vries J, Doerr M, Dove ES, Duncanson A, Hastings Ward J, Hendricks-Sturrup R, Ho CWL, Johns A, Joly Y, Kato K, Katsui K, Kumuthini J, Matshaba M, Mulrine S, Patch C, Ryan R, Viney W, “Engaged genomic science produces better and fairer outcomes” (2021) Wellcome Open Research, 9.
• Beauvais M, Ordish I, Joly Y, et al. "Responsible Data Sharing to Respond to the COVID-19 Pandemic: Ethical and Legal Considerations" (2020) Global Alliance for Genomics and Health.
• Song L, Joly Y, ‘‘The first gene-edited baby in the world: Will Chinese review its regulatory framework for gene-editing technology?‘’ (2019) Juriste International, 47.
• Joly Y, ‘‘The strongest defence against genetic discrimination’’ BioNews 18 June 2018 HTML
• Joly Y, Dalpé G, ‘’ Vers une discrimination génétique au Canada?’’ Opinions Droit Inc. 2019-03-19 HTML
• Marroco G., Joly Y. ‘’Understanding the dangers of genetic testing in immigration’’ CBA National, 27 September 2018. HTML
• Joly Y, Dupras C, Ngueng Feze I, Song L. Genetic Discrimination in Québec - A Flexible and Proactive Approach to Address a Complex Social Issue (Genome Quebec & Centre of Genomics and Policy, Montreal, 2017) (Also available in French). PDFHTML
• Joly, Y., Song L., Ngueng-Feze, I., Knoppers, B.M., Normative Approaches to Address Genetic Discrimination: Placebo or Panacea? SSRN, 2017. HTML
• Joly Y., Médecine Personnalisée, quels sont les véritables enjeux éthiques? (Paris, Sénat France)
• Genome Canada, Genome Canada Data Release and Sharing Policies, 2016
• Sénécal K, et al. (including Joly Y), Consolidated Statement of Principles, Quebec Network of Applied Genetic Medicine (RMGA), 2016.
• Hansson, M., […] Joly, Y., et al. Global Alliance for Genomics and Health : Accountability Policy (Global Alliance for Genomics and Health, 2015). PDFHTML
• Joly Y, Knoppers BM, Biologiste Infos, Médecine personnalisée et inégalités de santé, February-March 2015: 12-13.
• Hansson M, et al. (including Joly Y), Accountability Policy, Global Alliance for Genomics and Health, 2015.
• Ngueng Feze, I., Salman, S., Joly, Y., Knoppers, B.M., Submission to the Standing Senate Committee on Legal and Constitutional Affairs regarding Bill S-201, An  Act to prohibit and prevent genetic discrimination, Centre de génomique et politiques, Montréal, 9 juin 2014. PDFHTML
• JOLY, Y., LIVINGSTON, A., DOVE, E., Moving Beyond Commercialization: Strategies to Maximize the Economic and Social Impact of Genomic Research, Ottawa, Genome Canada, 2012 (également disponible en anglais). PDF
• Joly, Y. “Personalized Medicine: Not a sprint, but a relay” The GenoScape, 14 December 2011. HTML
• Ngueng Feze, I., Joly Y., Zawati, M., et Knoppers, B.M., “Genomic Population Biobanks: Legal, Ethical and Social Aspects”, Paris, UIA, 2011.
• Joly, Y., Tassé, A.M., Dove, E., Balancing Privacy Protections with Open, Collaborative, Biomedical Research: Implications for Updating the CIHR Privacy Best Practices Document, Ottawa, CIHR, 2011.
• Gold, R., Joly, Y., “The Patent System and Research Freedom: A Comparative Study”, Geneva, WIPO, 2010. PDF
• Knoppers, B.M., Joly, Y., General Problems Related to the Collection and Processing of Health Related Information for Insurance Purposes Including those which are Specific to Predictive Health Data CDBI-CO-GT4 (2010) 6REV, Strasbourg, Council of Europe, 2010.
• Bently, L., […] Joly, Y., et al., “Exclusions from Patentability and Exceptions and Limitations to Patentees’ Rights”, Genève, WIPO, 2010. PDF
• Bubela, T., […], Joly, Y., Evidence and Background Information to Inform Canada’s Approach to Public Health and Intellectual Property Issues in International Fora, Montreal, TIP, 2010, Submission to Health Canada’s International Affairs Directorate (IAD).
• Gold, E.R., […], Joly, Y., At the intersection of health and intellectual property: Issues, tools and directions for Health Canada, Montreal, TIP, 2010, Submission to Health Canada Bioethics, Innovation and Policy Integration Division.
• Frank, C., […] Joly, Y., Making an Impact: A Preferred Framework and Indicators to Measure Returns on Investment in Health Research, Ottawa: Canadian Academy of Health Sciences, 2009, (également disponible en anglais). PDFHTML
• Joly, Y., The Toronto Data Release Workshop, Ottawa, Genome Canada, 2009.
• Joly, Y., “The Transfer of Technologies towards a Personalized Approach”, (automne 2008) Discover 4 (également disponible en anglais). PDF
• Mgillivray, B., […] Joly, Y., et al., Options for Improving Public Access to Information on Health Products Clinical Trials in Canada, Ottawa, Health Canada, 2007 (également disponible en anglais). PDFHTML
• Joly, Y., Sillon, G., Knoppers, B.M., « La pharmacogénomique : nouveaux médicaments, nouvelles responsabilités? » dans DUFORT, F. & A-L. SAIVES (dir.), Le médicament : conception, production et consommation : perspectives interdisciplinaires pour un avenir commun, Montréal : GEIRSO, 2006.
• Sillon, G., Joly, Y., Regard Éthico-Juridique sur la pharmacogénomique perspectives et enjeux, Compte rendu du XVIème, Congrès Mondial de droit médical, 2006.
• Joly, Y., Integra v. Merck: The Resurrection of the American Research Exemption?, Montreal, Centre for Intellectual Property Policy, 2005.
• Joly, Y., “Insurance Companies Should Abandon Their Defensive Approach” 25(9) (2005) The Lawyers Weekly, 14.
• Gold, R., Carbone, J., Joly, Y., Sheremeta, L., Cloutier, M., Knoppers, B.M., Caulfield, T., Recommendations for Canadian Genetic Patents and Health Care: An International Comparison of Patent Regimes of Canada and its Major Trading Partners, Montréal: Centre for Intellectual Property Policy.
• Godard, B., Joly, Y., Pratte, A., Avard, D., Boucratie, N., Knoppers, B.M., Genetic Information and Privacy in the Workplace, Ottawa: Human Resources Development Canada, 2003.