Publications 2014
Peer Reviewed Articles
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Joly, Y., Knoppers B., « Médecine Personnalisée : Équité et Accès » 30 :2 (2014) Médecine/ Sciences 27-31.
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Caulfield, T., Burningham, S., Joly, Y., […] Isasi, R., […] Knoppers, B.M., et al., “A review of the key issues associated with the commercialization of biobanks” 1:1 (2014) Journal of Law and the Biosciences 94-110.
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Joly, Y., « Au gré des vents et marées, l’évolution de l’éthique de la recherche au Québec » 53 (2014) Revue générale de droit médical 31-33.
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Ragoussis, V., Ngueng Feze, I., & Joly, Y., “Sharing Genetic Information Online: An Exploration of GINA’s 2.0 Frontier” 14:11 (2014) The American Journal of Bioethics 53-55.
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Joly, Y., Saulnier K.M., Osien, G., Knoppers, B.M., “The ethical framing of personalized medicine” 14:5 (2014) Current Opinion in Allergy & Clinical Immunology 404-408
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Dove, E.S., Joly, Y., Tassé, A.-M., Public Population Project in Genomics and Society (P3G) International Steering Committee, International Cancer Genome Consortium (ICGC) Ethics and Policy Committee et KNOPPERS, B.M., “Genomic cloud computing: legal and ethical points to consider” (2014) European Journal of Human Genetics doi:10.1038/ejhg.2014.196 (publication en ligne) 1-8.
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Dalpé, G. et Joly, Y., “Opportunities and Challenges Provided by Cloud Repositories for Bioinformatics-Enabled Drug Discovery” 75:6 (2014) Drug Development Research 393-401.
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Milius, D., [...] Joly Y., “The International Cancer Genome Consortium’s evolving data protection policies” 32:6 Nature Biotechnology 519-523.
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Ngueng-Feze, I., Joly, Y., “Can't Always Get What you Want? Try an Indirect Route you Just Might Get What you Need: A Study on Access to Genetic Data by Canadian Life Insurers” 12:1 Current Pharmacogenomics and Personalized Medicine 56-64.
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Joly, Y., Tonin, P., “Social, ethical and legal considerations raised by the discovery and patenting of the BRCA1 and BRCA2 genes” 33:2 (2014) New Genetics and Society 167-180.
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Joly, Y. et al., “Life Insurance: Genomic Stratification and Risk Classification” 22:5 (2014) European Journal of Human Genetics 575-579.
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Lévesque, M., [...], Joly, Y., “Stem Cell Research Funding Policies and Dynamic Innovation: A Survey of Open Access and Commercialization Requirements” (2014) Stem Cell Reviews and Reports (publication en ligne) 1-17.
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Ogbogu, U., [...], Joly, Y., et al., “Policy recommendations for addressing privacy challenges associated with cell-based research and interventions” 15:7 (2014) BMC Medical Ethics 1-7.
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So, D., Joly, Y., Knoppers, B.M., “Clinical Trial Transparency and Orphan Drug Development: Recent Trends in Data Sharing by the Pharmaceutical Industry” 16:6 (2014) Public Health Genomics 322-335.
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Moher, E., Nicholls, S., Joly, Y., Little, J., “Genetic discrimination and insurance in Canada: Where are we now” 30:3 (2014) On the Risk, Journal of The Academy of Life Underwriting 46-52.
Book Chapters
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Joly, Y., Kim, R., Salman, S. & Ngueng Feze, I., “The use of Genetic Information Outside of the Therapeutic Health Relationship: An International Perspective”, dans QUINN, G., DE PAOR, A, BLANCK P. (eds), Genetic Discrimination Transatlantic Perspectives on the Case for a European Level Legal Response, Oxford : Routledge, 2014, 68-95.
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Rahimzadeh, V., Joly, Y., & Knoppers, B.M., “Introduction”, dans JOLY, Y. et KNOPPERS, B.M. (eds), Routledge Handbook of Medical Law and Ethics, Oxon : Routledge, 2014, 1-7.
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Dalpé, G. et Joly, Y., “Towards precision medicine: the legal and ethical challenges of pharmacogenomics”, dans JOLY, Y. et KNOPPERS, B.M. (eds), Routledge Handbook of Medical Law and Ethics, Oxon : Routledge, 2014, 339-366.
Books
Reports and other publications
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Ngueng Feze, I., Salman, S., Joly, Y., Knoppers, B.M., Submission to the Standing Senate Committee on Legal and Constitutional Affairs regarding Bill S-201, An Act to prohibit and prevent genetic discrimination, Centre de génomique et politiques, Montréal, 9 juin 2014.