Publications 2019

Peer Reviewed Articles

• Dupras C, Beck S, Rothstein MA, Berner A, Saulnier KM, Pinkesz M, Prince AER, Liosi S, Song L, Joly Y, ‘’Potential (mis)use of epigenetic age estimators by private companies and public agencies: human rights law should provide ethical guidance’’ 5:3 (2019) Environmental Epigenetics, 1-12. HTML
• Cléophat JE, Marin A, Pelletier S, Joly Y, Gagnon P, Déry A, Chiquette J, Gagnon B, Roy L, Bitzas V, Nabi H, Dorval M, "What do cancer patients' relatives think about addressing cancer family history and performing genetic testing in palliative care?" 28:2 (2019) European Journal of Human Genetics, 213-221. DOI 10.1038/s41431-019-0505-3HTML
• Rothstein M, Zawati MH, Beskow LM, Brelsford K, Brothers K, Hammack C, Hazel J, Joly Y, Lang M, Patrinos D, Saltzman A, Knoppers BM, ‘’Legal and Ethical Challenges of International Direct-to-Participant Genomic Research: Conclusions and Recommendations’’ 47:4 (2019) Journal of Law, Medicine and Ethics, 705-731.
• Issa AM, Thorogood A, Joly Y, Knoppers BM, “Accelerating evidence gathering and approval of precision medicine therapies: the FDA takes aim at rare mutations” (2019) 21:3 Genetics in Medicine, 542-544. DOI https://doi.org/10.1038/s41436-018-0099-0PDFHTML
• Ngueng Feze I, Marrocco G, Pinkesz M, Lacey J, Joly Y, “Flying under the radar: Two decades of DNA testing at IRCC” 17:1 (2019) Journal of Law and Technology 226-275.
• Joly Y, Dalpé G, Pinkesz M, “Is Genetic Discrimination Back on the Radar? A Commentary on the Recent Court of Appeal Reference Decision on the Genetic Non-Discrimination Act (GNDA)” (2019) 2:2 Canadian Journal of Bioethics, 94-96. PDF
• Hetu M, Koutouki K, Joly Y, ‘’ Genomics for All: International Open Science Genomics Projects and Capacity Building in the Developing World’’ (2019) 10:95 Frontiers in Genetics 1-9.
• Joly Y., Marrocco G., Dupras C., ‘‘Risks of compulsory genetic databases’’ (2019) 363:6430 Science 938-940.
• Capps B, Chadwick , Joly Y, et al., “Statement on Bioinformatics and Capturing the Benefits of Genome Sequencing for Society” 13:24 (2019) Human Genomics, 1-6. PDFHTML
• Cleophat JE, Pelletier S, Joly Y, et al., “Addressing cancer family history at the end of life: How frequent, relevant, and feasible is it? A survey of palliative care providers” 33:7 (2019) Palliative Medicine, 856-858. 
• Granados Moreno P, Ali-Khan SE, Capps B, Caulfield T, Chalaud D, Edwards A, Gold ER, Rahimzadeh V, Thorogood A, Auld D, Bertier G, Breden F, Caron R, César PMDG, Cook-Deegan R, Doerr M, Duncan R, Issa AM, Reichman J, Simard J, So D, Vanamala S, and Joly Y, ‘’Open Science Precision Medicine in Canada: Points to Consider’’ (2019) 4 FACETS 1-19.

Reports and other publications

• Song L, Joly Y, ‘‘The first gene-edited baby in the world: Will Chinese review its regulatory framework for gene-editing technology?‘’ (2019) Juriste International, 47.
• Joly Y, ‘‘The strongest defence against genetic discrimination’’ BioNews 18 June 2018 HTML
• Joly Y, Dalpé G, ‘’ Vers une discrimination génétique au Canada?’’ Opinions Droit Inc. 2019-03-19 HTML