Publications 2022

Peer Reviewed Articles

• Greenbaum D, Gurwitz D, Joly Y “Editorial: COVID-19 pandemics: Ethical, legal and social issues” 13:1021865 (2022) Front. Genet, 1-5.   DOI https://doi.org/10.3389/fgene.2022.1021865
• Moreno P.G, […] Joly Y, “D-PATH (Data Privacy Assessment Tool for Health) for biomedical data sharing” 28:1 (2023) Lex Electronica, 129-151. 
• Dupras, C […], et Joly Y, “Researcher perspectives on ethics considerations in epigenetics: an international survey” 14:110 (2022) Clinical Epigenetics, 1-13. DOI https://doi.org/10.1186/s13148-022-01322-7
• Joly, Y, Dalpe, G. “Genetic discrimination still casts a large shadow in 2022” (2022) Eur J Hum Genet.  DOI https://doi.org/10.1038/s41431-022-01194-8
• Lapointe J, […], Joly Y, et al. “Polygenic Risk Scores and Risk-Stratified Breast Cancer Screening: Familiarity and Perspectives of Health Care Professionals” 24:11 (2022) Genetics in Medicine, 2380-2388. DOI 10.1016/j.gim.2022.08.001PMID 36057905
• Charron M, Kaiser B, Dauge A, Gallois H, Lapointe J, Dorval M, Nabi H, Joly Y, “Integrating hereditary breast and ovarian cancer genetic counselling and testing into mainstream clinical practice: Legal and ethical challenges” (2022)  Critical Reviews in Oncology / Hematology, 1-10.  DOI 10.1016/j.critrevonc.2022.103797PMID 36031172
• Kallesoe SA, Rabbani T, Gill EE, Brinkman F, Griffiths EJ, Zawati M, Liu H, Palmour N, Joly Y, Hsiao WW, “Canadians’ opinions towards COVID-19 data-sharing: a national cross-sectional survey” 13:2 (2023) BMJ open, 1-13 DOI  doi:10.1136/ bmjopen-2022-066418PDF
• Murtagh MJ. […] Joly Y., et al. “Engaged genomic science produces better and fairer outcomes: an engagement framework for engaging and involving participants, patients and publics in genomics research and healthcare implementation [version 1; peer review: 2 approved] ” 6:311 (2021) Wellcome Open Res, 1-13.  DOI https://doi.org/10.12688/wellcomeopenres.17233.1
• Saulnier K, Bernier A, Liosi S, Earp B, Berrios C, Dyke SOM, Dupras C, Joly Y, “Studying Vulnerable Populations Through an Epigenetics Lens: Proceed with Caution” 5:1 (2022) Canadian Journal of Bioethics, 68-78. DOI https://doi.org/10.7202/1087205arPDF
• Charron M, Saulnier K, Palmour N, Gallois H, et Joly Y, “Intersex Stigma and Discrimination: Effects on Patient-Centred Care and Medical Communication” 5:2(2022) Canadian Journal of Bioethics, 1-11.  DOI https://doi.org/10.7202/1089782arHTML
• Huerne K, Palmour N, Wu A, Beck S, Berner A, Siebert R, Joly Y, “Auditing the Editor: A Review of Key Translational Issues in Epigenetic Editing” 5:2 (2022) The CRISPR Journal, 1-10. DOI https://doi.org/10.1089/crispr.2021.0094
• Rothstein MA,  Zawati MH, Thorogood A, Beauvais MJS, Joly Y, Brothers KB, Lang M, Andanda P, Ho C, Isasi R, Kaye J, Bok Lee W, Nnamuchi O, Saltzman A, Knoppers BM, "Streamlining Ethics Review for International Health Research" 3755:6583 (2022) Science, 825-826.
• Puscas M, [...], Joly Y, et al., "Rare Disease and Space Health: Optimizing synergies from Scientific Questions to Care" (2021) Nature Microgravity (Submitted).
• Arych M, Joly Y, "Genetic Discrimination in Access to Life Insurance: Does Ukrainian Legislation Offer Sufficient Protection against the Adverse Consequences of the Genetic Revolution to Insurance Applicants?" 11:2 (2022) Laws, 1-15.

Book Chapters

• Pinkesz M, Marrocco G, Joly Y, Zawati MH, “Re-examining the Canadian law of informed consent to medical treatment in the age of informatics” in T. Vansweevelt & N. Glover-Thomas, eds., Informed Consent and Health: A Comparative Analysis (United Kingdom: Edward Elgar Publishing), 2020, 32-73. DOI https://doi.org/10.4337/9781788973427.00009
• Gallois H, Zawati M, Knoppers BM, Nabi H, Simard J, Dorval M, Joly Y, “Un pays – Une perspective canadienne de l’éthique en oncogénétique” dans Combe D, Lelouvier M, Regards croisés sur l’éthique en oncogénétique, AVENIR MASFIP (Recherche et accompagnement en oncogénétique), 2021, 64- 68. 
• Joly Y., Marrocco G, Xu H, “La propriété et le commerce du matériel biologique et des données génétiques en droit Québécois: loin des yeux, loin du corps’’ dans Mélanges Robert P. Kouri. Éditions Yvons Blais, 2022, 65-100.

Reports and other publications

• Anya E R, P, Dalpé G, and Joly Y, “The Genetic Discrimination Observatory: A Key Global Resource in Addressing Genetic Discrimination.” Accessed 15 December 2022. 
• Dalpé G, Cheung K, and Joly Y, “Opportunities and challenges of using epigenetic technologies in defence and security contexts”, Mobilizing Insights in Defence and Security (MINDS), Montreal, Canada: Department of National Defence, 5 April 2022. PDF
• Faraji SE, Liu H, Dauge A, Kaiser B, Granados-Moreno P. & Joly Y, ‘’A Comparative Review of Data Sharing Regulations and Practices in Four Jurisdictions (Australia, France, United Kingdom, United States)’’ CanCOGeN project, Genome Canada, 4 April 2022. 
• M.E. D’Amato, Y. Joly, V. Lynch, H. Machado, N. Scudder, M. Zieger, ‘’Ethical Recommendations for Forensic Genetic Frequency Databases’’ 2022
• Joly Y, Liu H., and Ma’n Z, on behalf of the CanCoGeN Data Sharing Group, “CanCOGeN Pan-Canadian Experience in Data Sharing: Lessons Learned and Recommendations for the Road Ahead”, Genome Canada, Ottawa, 2022.
• Bernier A, Liu H, McDougall R, Joly Y, “Law and Policy of Public Health Information Sharing in Canada” (2021) A Report to the Public Health Agency of Canada, Centre of Genomics and Policy, Montreal, Canada, 102.