Conferences
Conferences
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« The ethics of data and sample-based genomic research projects », The ethics of data and sample-based genomic research projects, MacKay International Medical Education Conference, Taipei, Taiwan, 26 October 2024.
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« Lessons Learned from the Covid-19 Pandemics about opportunities and pitfall for public health genomics », Lessons Learned from the Covid-19 Pandemics about opportunities and pitfall for public health genomics, 55th Asia-Pacific Academic Consortium for Public Health conference, Busan, South Korea, 24 October 2024.
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« The critical role of healthcare in preparing for an uncertain future », The critical role of healthcare in preparing for an uncertain future, Talk concert, 55th Asia-Pacific Academic Consortium for Public Health conference, Busan, South Korea, 24 October 2024.
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« Regulation of Unproven Stem Cell Therapy: Check but not Checkmate », Regulation of Unproven Stem Cell Therapy: Check but not Checkmate, Division of Medical Humanities and Social Sciences, College of Medicine, Yonsei University, Seoul, South Korea, 21st October 2024.
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« Ethical & privacy considerations », “Ethical & privacy considerations”, 1st McGill-DKFZ workshop on cancer prevention and therapeutic innovations, Hotel Omni Mont-Royal, Montreal, July 30-31 2024.
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« Forensic Database Advisory Board and Ethical Considerations for Forensic Genetic Frequency Databases », “Forensic Database Advisory Board and Ethical Considerations for Forensic Genetic Frequency Databases” 30th Congress of the International Society for Forensic Genetics – ISFG 2024 Santiago de Compostela, Spain, 9 September 2024, 9 September 2024.
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« Genetically modified ethical principles to address emerging ELSI », “Genetically modified ethical principles to address emerging ELSI” Millions of people, one dream workshop, Antwerp, Belgium, 13 September 2024.
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« Ecogenetics: a necessary ingredient of planetary health law? », “Ecogenetics: a necessary ingredient of planetary health law?”, Workshop: The Ecological Genome Project and the Promises of Ecogenomics for Society, Brocher Foundation, Geneva, Switzerland, 28-29 May 2024.
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« Implementing Patient-in-the-loop data in Quebec – Next steps: legal, technical, logistical, policy », “Implementing Patient-in-the-loop data in Quebec - Next steps: legal, technical, logistical, policy” Laurie Hendren Symposium on Patient-in-the-Loop Data at the Research Institute of the McGill University Health Centre, Montreal, 28 August 2024.
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« the Canadian legal landscape and impact on genetic counselling practice in Canada », Presented at the UBC Genetic Counselling Continuing Ed series on the topic of a panel discussion, Mar. 1, 2023.
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« La protection de la confidentialité de l’information dans la recherche en pharmacogénomique », Séminaire d’actualité en droit médical – Droit et éthique de la recherche médicale, Toulouse, France, May 6th, 2003.
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« L’accès aux échantillons biologiques et à l’information génétique des patients décédés pour fin de recherche en génétique : perspective québécoise », Séminaire d’actualité de droit médical, Toulouse, France, 7 May 2004.
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« Nouveaux défis éthiques posés à l’entreprise, éthique dans les essais cliniques et performance de l’entreprise », Ville St-Laurent, Québec, Canada, 24 November 2004.
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« Stratégies de diffusion web, l’exemple de IPGen », 74e congrès de l’ACFAS, Montéal, Québec, Canada, 8 May 2006.
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« Accès à l’information génétique contenu au dossier médical par les assureurs : développements récents », Séminaire d’actualité de droit médical, Toulouse, France, 10 June 2006.
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« Whole Genome Sequencing in the Research, Translational and Clinical Contexts: Some ELSI’s », Genome Canada Platform Leader’s Meeting, Toronto, Ontario, Canada, 26 January 2010.
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« Access to Controlled Data: The Role of ICGC’s Data Access Compliance Office », ELSI and Privacy Task Force Meeting, Canadian Partnership for Tomorrow Project, Montréal, Québec, Canada, 26 April 2010.
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« Returning Research Results to Participants on large-scale genomics studies: The Perspective of ICGC », The Biology of Genomes ELSI panel, Cold Spring Harbor, U.S.A, 13 May 2010.
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« Barrières juridiques à l’utilisation de la pharmacogénomique en pratique clinique », ACFAS 2011 - Le droit comme vecteur de la gouvernance en santé? Défis théoriques et enjeux pratiques de l’accès aux soins de santé, Sherbrooke, Québec, Canada, 12 May 2011.
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« The Risks and Promises of Pharmacogenetics and Personalized Medicine: An Interdisciplinary Panel Discussion », McGill Research Group on Health and Law, Montréal, Québec, Canada, 5 October 2011.
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« L’innovation ouverte dans le secteur des sciences de la vie », Cycle de conférence Droit et sciences de la vie, Sherbrooke, Québec, Canada, 7 December 2011.
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Emily Kirby, Yann Joly, Vural Özdemir, Ida Ngueng Feze and Bartha M. Knoppers (poster), « The ethical and legal framework of metagenomics water safety tests in Canada », 11th World Congress on Bioethics, Rotterdam, Netherlands, 26-29 June 2012.
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P. Granados Moreno, J. Kim, M. Levesque, R. Isasi, B. Knoppers, Y. Joly (poster), « Stem Cell Research Funding Policies in North America: Open Access and Commercialization Requirements from Public Funders », The 2013 Till & McCulloch Meetings, Banff, Alberta, 23-25 October 2013.
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« Tests et biobanques génétiques : Encadrement légal et éthique pour protéger la vie privée », 22ième Congrès de l’Association sur l’accès et la protection de l’information (AAPI), Québec, Canada, 16 April 2014.
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Emilie de Vries-Séguin, Derek So, Bartha M. Knoppers, Yann Joly (poster), « Protecting Privacy through Controlled Access: The Successful Five-Year Experience of the ICGC Data Access Compliance Office », 4th Canadian GE3LS and Health Services and Policy Research Conference, Vancouver, British Columbia, 19 April 2015.
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« Is Canada’s approach to preventing genetic discrimination sustainable? », Korean Parliamentarian Forum on Global Health 2018, Seoul, South Korea, 16-17 April 2018.
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« Ecogenetics: a necessary ingredient of planetary health law? », Workshop: The Ecological Genome Project and the Promises of Ecogenomics for Society, Geneva Switzerland, 28-29 May 2024.
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« La science ouverte dans les grands projets en génomique : une nouvelle société en construction? », GRISOF Atelier science ouverte et santé, Québec, Canada, 30-31 May 2024.
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« Learning from the LHS experience: the good, the bad and the data », Medical Ethics and Law Conference, London, UK, 18 April 2024.
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« The Governance of Genomic data and AI in a globalized research context: Recent standards and initiatives », Institute of European and American Studies at Academia Sinica, Taipei, Taiwan, 15 April 2024.
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« Introduction: policy for international genomic data sharing in an interconnected world », Tokyo Symposium & Workshop on Genomic Medicine, Therapeutics and Health, Tokyo, Japan, 10 April 2024.
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« Policy for international genomic data sharing in an interconnected world », ELSI Forum, The Institute of Medical Science, The University of Tokyo, Tokyo, Japan, 9 April 2024.
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« Thérapie assistée par la psilocybine: Standards, responsabilités et perception des médecins », P3A Psilocybine en fin de vie, Audace, Acceptabilité, Accès, Forum 2024, Quebec City, Canada, 22 March 2024.
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« Les bases de données génétiques criminalistiques : Outils nécessaires ou glissement vers la société de contrôle », Centre de recherche en droit public (CRDP) Les mâtinés de la justice, Montreal, Canada, 5 February 2024.
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« Enabling ethical, legal, and responsible human genome data sharing », Panel discussion, WHO consultation on WHO guiding principles for human genome data sharing, Virtual, 18 January 2024.
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« Promoting Access to Health Using a Comparative Law Approach: The Example of the International Genetic Discrimination Observatory », 2023-2024 Seminar Series, McGill Research Group on Health and Law, Montreal, Canada, 10 January 2024.
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« The Song Remains the Same? A comparative assessment of Canadian life insurance application forms post GNDA », GDO 4th Scientific Meeting, Panama City, 11-12 December 2023.
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« How international comparative law can become a driver for legal reform at the national level: The example of the International Genetic Discrimination Observatory », Regulatory Governance of Emerging Health Technologies, The University of Hong Kong, Centre for Medical Ethics and Law, Hong Kong, 4-6 December 2023.
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« Legal, Ethical, and Logistical Issues Associated with Return of Raw Genomic Data », Returning Raw Genomic Data: Patient Autonomy or Legal Minefield? Medical Research Futures Fund Genomics Health Futures Mission GHFM76758, Expert Workshop, Sydney, Australia, 1 December 2023.
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« Protection de l’information de santé et non-discrimination génétique – Quoi savoir pour bien gérer ses bases de données génétiques », Conférences scientifiques, Centre intersectoriel en santé durable – UQAC, Chicoutimi, Québec, 15 November 2023 .
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« Lessons Learned from the COVID-19 Pandemic for Law and Public Health Reform », Biomedical Law Research Institute special lecture, Ewha Institute for Biomedical Law & Ethics, Seoul, South Korea, 4 October 2023.
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« The GDO @ Work: Mapping Forensic Genetics Databases, Policies and Practices around the World », 27th World Congress for Medical Law (WCML), Vilnius, Lithuania, 2 -4 August, 2023.
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« McGill’s Centre of Genomics and Policy: A unique, comparative, human rights approach to resolve the ethical and policy issues of genomic medicine », RNA & the Future of Medicine, Montreal, Quebec, Canada, 1-2 June, 2023.
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« Current initiatives related to privacy and data sharing in genomics », HUGO HGM 2023, Rio de Janeiro, Brazil, 4 May 2023.
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« Medical Liability in Cancer Genetics Canadian/U.S. perspective », BRCA 2023: Moving into the Mainstream. The 9th International Symposium on Hereditary Breast and Ovarian Cancer, Montreal, Quebec, Canada, 2-5 May 2023.
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« Genetic Discrimination: A Comparative Law Perspective », 2023 Doctoral Intellectual Property Seminar, University of Science and Technology of China, HeFei, China, 26 April, 2023.
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« Regulatory Ethics Workstream (REWS) », GA4GH April Connect 2023, London, United Kingdom, 19 April 2023.
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« DNA to RNA: Excellence in Canadian Genomics and RNA Therapeutics », Canada-in-Asia Conference, Singapore, 22 February 2023.
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« Role of Genomics to reshaping public health policy », Canadian Science Policy Centre (CSPC) 2021 (virtual) , 24 November 2021.
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« Facilitating data sharing at the GA4GH Regulatory and Ethics Workstream (REWS) », Genomic Data Sharing Workshop, Centre for Law and Genetics, (virtual), Hobart, Australia, 15 November 2022.
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« The evolving legislative landscape for data in Quebec », Centre for Outcomes Research and Evaluation Annual Retreat, Montreal, Quebec, Canada, 21 November 2022.
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« GA4GH and the Genetic Discrimination Observatory: Developing Tools to Prevent Genetic Discrimination from Impeding Data Sharing Initiatives », GA4GH 10th Plenary, Barcelona, Spain, 22 September, 2022.
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« The Devil’s in the details: Ethical issues of human germline gene therapy », Human Genetics Student Society(HGSS) Annual Conference 2022, Montreal, Canada, 8 April 2022 .
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« Genetic Discrimination in 2020: Insights from the International Scene », ASHG (Virtual), Montreal, Canada, 29 October 2020.
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« History and framing of governance considerations for genomics », WHO Science Council Accelerating access to genomic technologies for global health, (virtual), 2 December 2021 .
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« Of Snakes and ladders: AI and the concept of learning healthcare systems », The 2022 International Conference at Yonsei University (virtual), South Korea, 22-23 August 2022.
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« The Genetic Discrimination Observatory: opportunities and challenges », 5th McGill - RIKEN Symposium, Montreal, Canada, 20 September 2022 .
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« Genetic Discrimination in 2022: What is new on the GDO radar? », Canadian Association of Genetic Counsellors (CAGC), Beyond The Core Competencies Webinar Series (virtual), 16 June 2022.
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« Genetic discrimination: International ethico-legal perspectives and the Genetic Discrimination Observatory », European Society of Human Genetics (ESHG) , Vienna, Austria, 11 June 2022 .
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« Harnessing Genomic Technologies for Improved Healthcare in Africa », Global Emerging Pathogens Treatment Consortium, GET Webinar (virtual), Monrovia, Liberia, 27 April 2022.
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« Personal Data Protection Regimes & Sharing of Human Genetic Data for Research », PHG Foundation and the Centre for Medical Ethics and Law, Hong Kong University (virtual), 22 April 2022.
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« Unpacking the many meanings of Genetic Discrimination », Chaired, Genetic Discrimination Group, 2022 GA4GH Connect Meeting, Montréal, Quebec, Canada, 21 April 2022.
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« Of spiders and webs -The influence of research ethics and data governance on contemporary medical practice », Faculty of Medicine Postdoctoral Association's 14th Annual Research Day (keynote), University of Ottawa (virtual), 25 March 2022.
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« Génétique et Perception du Handicap », Santé, handicap(s) et dépendance(s), Université Jean Moulin III (virtual), Lyon, France, 11 March 2022.
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« Addressing Key Challenges in Biomedical Data Sharing », Biomedical Data Science Seminar Series (virtual), University of Virginia, 18 February 2022.
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« International comparative analysis of legal Issues of COVID-19 Vaccination Certificate », The 5th Korean Parliamentarian Forum on Global Health 2021: Vaccine Pass and Legislative Trends in Globe for Post-COVID 19 (virtual), 30 November 2021.
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« Canadian Misadventures in Data Sharing, Equity and Trust », 2021 Canadian Bioethics Society Annual Conference, Ottawa, Ontario, Canada (Virtual Meeting), 27 May 2021.
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« Latest development on GD and the Canadian GNDA », 2021 BRCA Symposium, Montréal, Quebec, Canada (Virtual Meeting), 5 May 2021.
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« Changing the Perception of Data Sharing in Canada: From Commodity to Strategic Priority », COVID & Genomics ONLINE, COVID-19 Data Sharing, Front Line Genomics, Virtual Meeting, 5 May 2021.
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« Genetic Discrimination Observatory », ELIXR Webinar, Hinxton Cambridgeshire, UK (Virtual Meeting), 29 April 2021.
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« La discrimination génétique: une illustration de la difficulté d’envisager les développements scientifiques à travers le prisme du droit », Tribunal des droits de la personne, Québec (Virtual Meeting), 20 April 2021.
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« Pathogen Data Sharing: Opportunities and Challenges from COVID-19 », Expert Advisory Group on Pan-Canadian Health Data Strategy, Canada (Virtual Meeting), 18 January 2021.
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« Genetic Discrimination a Transnational Ethical Challenge », AIA Group Limited, Hong Kong (Virtual Meeting), 7 December 2020.
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« La loi Canadienne sur la non-discrimination génétique, trop peu trop tard », Réunion scientifique, Service médecine génique du CHUM, Virtual Meeting, 22 October 2020.
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« La régulation Canadienne sur la non-discrimination génétique », Les normes à l'épreuve de la génétique et de la médecine génomique, Regard pluridisciplinaire sur la démocratisation du séquençage du génome, Virtual Meeting, 6 October 2020.
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« Emerging Practices and Outstanding Issues in the Context of Omics Data Sharing », Maximising Investments in Health Research: FAIR Data for a Coordinated COVID-19 Response, European Commission, Virtual Meeting, 27 October 2021.
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« Data Governance and Access: International Perspective », National Cancer Policy Forum Workshop on Opportunities and Challenges for Using Digital Health Applications in Oncology, NASEM, Virtual Meeting, 13 July 2020.
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« The Genetic Non-Discrimination Act upheld by the Supreme Court: Does this mean the end of genetic discrimination in Canada? », The Canadian National Hereditary Cancer Rounds, Videoconference, 23 September 2020.
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« Moving forward to address genetic discrimination in Canada: The Fate of the GNDA and the Genetic Discrimination Observatory », Canadian Association of Genetics Counsellors, Virtual Meeting, 28 May 2020.
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« Challenges in Access to Healthcare for Intersex Individuals in Québec and Canada », Research Group on Health Law (RGHL), Montreal, Quebec, 9 January 2020.
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« Consentement numérique à la recherche: Nouvelle Plateforme, mêmes écueils », Colloque de la Chaire L.R. Wilson La mort du consentement numérique?, Montreal, Quebec, 13 March 2020.
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« Les données prédictives de santé, opportunités et enjeux éthiques pour le Québec », Journée Phare 2019, Congrès québécois en science de la santé, Québec, 5 December 2019.
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« Entre recherche et soins, le Québec est-il prêt pour un système de santé numérique apprenant? », Les entretiens Jacques-Cartier, Montreal, Quebec, 6th November 2019.
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« Data sharing in the context of learning healthcare systems: A common objective for patients, physicians and researchers », 7th EAHL Conference, Toulouse, France, 25-27th September 2019.
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« Genomics Data Sharing, a Roadmap for Canadian Food Safety », 3rd Salmonella Syst-OMICS Annual Meeting, Montreal, Canada, 26 June 2019.
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« Genomics in the Learning Healthcare System – Ethical and Regulatory Perspective », Genomics, Privacy and Artificial Intelligence, Canadian GE3LS and Health Services and Policy Research Conference,, Fairmont le Château Montebello, Quebec, Canada, 17 June 2019.
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« EpiShare: A collaboration with GA4GH to build tools and standards to enable the responsible sharing of epigenetic data », Canadian GE3LS and Health Services and Policy Research Conference, Fairmont le Château Montebello, Quebec, Canada, 17 June 2019.
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« Genetic Discrimination A widespread ELSI Issue », Department of Biomedical Ethics and Public Policy, Osaka University, Osaka, Japan, 10 June 2019.
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« Ethical and legal aspects of genetic testing in PD », 5th World Parkinson Congress, Kyoto, Japan, 6 June 2019.
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« The Ethical Implications of FH Genetic Diagnosis », Montreal Cholesterol Summit, Montreal, 30th May, 2019. .
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« Precision Medicine – The Importance of Ethics and Public Policy », 3rd Canada-China Innovation & Entrepreneurship Forum, Montreal, Montreal, 21st May, 2019..
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« Sharing Our Genetic Information », Just Genes? Ethical, Legal and Social Questions for Genetics, Public forum on the ethical, legal and social implications of genetics and related technologies, Hobart, Australia, 29 April, 2019..
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« ’Data Sharing in the Context of Learning Healthcare Systems », Korean Parliamentarian Forum on Global Health 2019: The Global Legislation Trends in Precision Medicine and Big Data, Seoul, Korea, 22nd-23rd April, 2019..
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« Key policy challenges over the lifecycle of a biobank », The National Association of Biobanks and Biobanking Specialists is a key element in the development of biobanking in Russia, XXVI Russian National Congress, "Man and Medicine", Moscow, Russia, 9th April 2019..
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« Open science or open for business? The nuances and philosophy behind the different models of open genomics projects », Open Science- What do we need to know to protect the interests of Publics and Scientists? Human Genome Meeting HUGO 2019, Seoul, Korea, 24-26th April , 2019.
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« Data Sharing: Emerging International Consensus and Policy Guidance », Annual Biobank China 2018, CNGB, Shenzhen, China, December 1, 2018 .
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« Data sharing: How to meet the scientific community requirements for international collaborations in genomics and health », CAS-MPG Partner Institute for Computational Biology, Shanghai, China, November 27, 2018.
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« Assurabilité : Survol de la législation et situation actuelle », Journée - Conférence : Ensemble pour prendre le cancer de l’ovaire en main, Montreal, Quebec, November 9, 2018.
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« Un modèle de consultation citoyenne de notre temps : le forum québécois sur la discrimination génétique », Les séminaires de l’IRSPUM, Automne 2018, Montreal, Quebec, Octobre 31, 2018.
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« The ethics of epigenetics research: Activities of the IHEC Bioethics Workgroup », Workgroup’’ IHEC Annual meeting, Science Day, Hong Kong, China, October 28, 2018.
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« Legal Aspect of Genetic Testing Regarding Insurance and Employment », Panel Discussion, 20th Congress of the International Academy of Comparative Law, Fukuoka, Japan, July 24, 2018.
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« Dynamic consent: An identity crisis? », Consultation Meeting organized by the Korean Centre for Disease Control, Seoul, South Korea, April 18, 2018.
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« Is Canada’s approach to preventing genetic discrimination sustainable? », Korean Parliamentarian Forum on Global Health 2018: Genetic Discrimination in the World, Seoul, South Korea, April 16-17, 2018.
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« The ethics of epigenetics research: Perspective of the IHEC Bioethics Workgroup », The International Working Group Meeting, Office for Human Research Protections , Washington, DC, April 11, 2018.
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« Assurances et enjeux éthiques des tests génétiques », Réseau Rose - 1er Symposium risque héréditaire de cancer, Québec, November 24, 2017.
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« L’infonuagique au service de la santé, un passe-droit? », Enjeux éthiques et juridiques de l'innovation numérique en santé, Montréal, October 16, 2017.
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« The Challenge of Harmonizing Data Access Agreements for IHEC », IHEC 2017 Annual Meeting & Science Days, Berlin, Germany, October 12-14, 2017.
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« Genetic Discrimination: Legal Approaches and Proposal for a Genetic Discrimination Observatory », 23rd WAML Annual Congress, 50th Golden Anniversary Meeting, Baku Azerbaijan, July 1-13, 2017.
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« A need to Redefine Privacy in the Context of a Data-Intensive Canadian Health Ecosystem », 2e rencontre en droit de la santé: Health Law at the Frontier, Montreal, June 16, 2017.
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« A need to Redefine Privacy in the Context of a Data-Intensive Health Ecosystem », Genomic ELSI Forum, Yonsei University, Seoul South Korea, June 15, 2017.
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« Gouvernance des tumorothèques: tendances internationales », Colloque, Tumor Banks: Régulation publique des Centres de Ressources Biologiques en cancéroloqie, Toulouse, France, May 30, 2017.
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« Discrimination génétique, développements récents et contexte Nord-Américain », "Discrimination génétique, développements récents et contexte Nord-Américain" Université Toulouse 1 Capitole, Toulouse, France, May 24, 2017.
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« Epigenetic Responsibility and Public Policies: Opportunities and Pitfalls », McGill Research Group on Health and Law, 2017 Scientific Seminar, Montreal, 20 January 2017.
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« Genetics and Insurance in Canada: Will Bill S-201 to Prohibit and Prevent Genetic Discrimination Resolve the Controversy? », Canadian Association of Genetic Counsellor (CAGC), 2016 Annual Education Conference, Montreal, 2 November 2016.
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« Best Practices for Companies Creating Biobanks », ACRP Canada Chapter, Biobanking: Ethical, Regulatory and Practical Considerations for Clinical Trials, Montreal, 17 November 2016.
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« Ethical Issues in Big Data », Big Data Analytics Conference Series, The British Library, London, 29 June 2016.
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« Are Data Sharing and Privacy Protection Mutually Exclusive in Personalized Health Research? », International Congress on Personalized Healthcare, Montreal, 13 June 2016.
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« ICGC: An International Governance Approach for Data Intensive Genomic Research », Taking a Provincial, National and International Pulse of Research Ethics Review, 2016.
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« Reciprocity », Canadian Bioethics Society, Toronto, 25 May 2016.
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« Genetic Discrimination and Life Insurance: A Question of Perception », @ Risk: Risk Management, Democratization and Evidence-Based Decision-Making, Ottawa, 19 May 2016.
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« Genetics, Ethics and Civil Liberties », NLC 2016 Frontiers in Genetics, Cobourg, 21 April 2016.
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« Controlled Data Access for Precision Medicine an Acceptable Trade-off », Precision Medicine Legal and Ethical Challenges, Hong Kong, 4 April 2016.
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« Transhumanism and governance: A possible connection between genetic engineering and cybernetics », En Deux Mots: Law + Tech, Montréal, Québec, 15 March 2016.
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« « Science et gouvernance l’Insaisissabilité de l’information génétique » », Colloque annuel des chercheuses et chercheurs du RDCG, Montreal, Québec, 6 novembre 2015.
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« (Valorization) Commercialization of Health Research », 14th Annual New Principal Investigator Meeting, Saint-Adèle, Québec, October 30, 2015.
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« Data Sharing for Genomic Research: Recent Developments in Ethics and Policies », 1st Joint Symposium of International Partners, Kyoto University Graduate School of Medicine, Kyoto, Japan, October 3, 2015.
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« Health Law and Personalized Medicine: Is the Law Responsive to the new Medical Context », Centre for Medical Ethics and Law, Hong Kong, China, September 30, 2015.
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« Intellectual Property », Human Genomics and ELSI Research in South Korea, Seoul, South Korea, September 22, 2015.
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« Cancer Personalized Medicine: Reflections for a Canadian Governance Framework », VIième conference international de l'AIICM: Médecine personnalisée et enjeux Interdisciplinaire , Montréal, Québec, August 20-21, 2015.
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« Data Sharing and Privacy Issues in Epigenetics: Considerations of the IHEC Bioethics Workgroup », Questioning research in epigenetics: an interdisciplinary approach, Toulouse, France, June 2, 2015.
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« Human Rights Challenges », Emerging Technologies and Human Right, International Conference Organized by the Bioethics Committee of the Council of Europe , Strasbourg, France, May 4-5, 2015.
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« International OMICS Data Sharing Challenges », The EU Adequacy Principle and Data Sharing in Genomic Research, IAPP Global Privacy Summit, Washington, D.C., March 5, 2015.
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« Protecting Privacy in Cloud-Based Genomic Research », Pathways to Privacy: A Return to First Principles for Privacy at the Cutting Edge, Ottawa, Ontario, February 26, 2015.
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« Open Sharing of Genomic Data: Considerations of the IHEC Bioethics Workgroup », EPIGENomics and Healthcare Policy: Challenges and Opportunities, Milan, Italy, December 2, 2014.
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« « Les cancers rares : enjeux juridiques et éthiques » », Symposium, Les cancers rares: assembler les pieces du casse-tête, Montréal, Québec, 3 novembre 2014.
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« Myriad Genetics and BRCA1: the legal and ethical meandering of a human gene patent », The 20th Anniversary of the Discovery of BRCA1, The Breast-Ovarian Cancer, Montreal, Quebec, October 28, 2014.
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« Genomic Cloud Computing on Public Infrastructures: Legal and Ethical Considerations », 9th ICGC Scientific Workshop, Beijing, China, May 18, 2014.
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« « Tests et biobanques génétiques : Encadrement légal et éthique pour protéger la vie privée » », 22ième Congrès de l'Association sur l'accès et la protection de l'information (AAPI), Québec, 16 avril 2014.
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« « Médecine personnalisée et santé publique : Perspective québécoise » », Colloque International France-Canada, Les enjeux de la médecine personnalisée dans le domaine de la santé publique , Paris, France, 7 février 2014.
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« Cancer Genomics: Access to Genetic Information by Life Insurers », Canadian Cancer Research Conference , Ottawa, Ontario, November 6, 2013.
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« « Vie privée et confidentialité de l’information médicale: repenser le droit à l’heure des plus récentes avancées technoscientifiques » », 68ième congrès annuelle de l'AJBM, Montréal, Québec, 10 mai 2013.
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« Navigating the Innovation Seaway in Stem Cell Research: Between Commercialization and Open Science », Understanding Stem Cell Controversies - 2nd Intensive ELSI Intensive Course, Montreal, Quebec, April 25, 2013.
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« Genetic Discrimination », Exploring the unique social/ethical and health systems challenges of low cost whole genome sequencing workshop, Montreal, Quebec, April 19, 2013.
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« Addressing the Challenge of Re-identifiability: The ICGC Experience », Joint Conference of HGM 2013 and 21st International Congress of Genetics, Singapore , April 16, 2013.
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« Controlled Access: A Middle Road Between Open Access and Privacy », Privacy Challenges in Cell Therapy Research, Policy Development Workshop, Banff, Alberta, March 7, 2013.
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« Ethical and Legal Issues of Biobanks Deconstructed », 9th Annual Bellairs Research Workshop: Personalized Treatment of Disease with advanced Technology, Barbade, January 18, 2013.
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« Dream an Impossible Dream? The Marriage of Data Sharing and Privacy Protection », Understanding Biobanks Cycle of Conferences, Montreal, Quebec, November 7, 2012.
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« « Le droit à l’heure de la nouvelle recherche biomédicale » », De la créativité dans le droit-50 ans de recherche au CRDP, Montréal, Québec, 11 octobre 2012.
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« Genetic Discrimination, Life Insurance and Genetic Exceptionalism: How did we get here? », Banff, Using and Abusing Evidence in Science and Health Policy, Banff, Alberta, June 2, 2012.
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« « Le rôle des modèles ouverts dans la valorisation de la recherche biomédicale » », Université de Sherbrooke, Sherbrooke, Québec, 17 mai 2012.
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« The ICGC Data Access Compliance Office: The Ethics Review Process », 6th ICGC Scientific Workshop, Cannes, France, March 21, 2012.
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« Access to Genetic Information by Insurers: Current Issues and Future Outlook », Hôpital de Montréal pour les Enfants - Tournées Départementales, Montreal, Quebec, March 9, 2012.
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« Use of Genetic Information by Third Parties: Peering in Pandora’s Box », Genetic Discrimination – Transatlantic Perspectives on Case for a European Level Legal Response, European Parliament, Brussels, Belgium, March 6, 2012.
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« Génétique et assurance: Enjeux et développements récents », Service de médecine génique (CHUM), Montréal, Québec, 2 février 2012.
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« Ethical, Legal and Social Issues of Personalized Medicine », Personalized Medicine in Canada, Ottawa, Ontario, January 13, 2012.
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« L’innovation ouverte dans le secteur des sciences de la vie », Cycle de conférence Droit et sciences de la vie, Sherbrooke, 7 décembre 2011.
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« Use of Genetic Information by Third Parties: Legal and Ethical Implications », Genetic Discrimination - Transatlantic Perspectives on the Case for a European Level Legal Response' Galway, Ireland, November 19, 2011.
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« Biomedical Research: Restrictions on Data Access », If We Build It: Can They Access? Challenges for Biomedical Research, Montreal, Quebec, November 4, 2011.
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« Genomic Population Biobanks: Legal, ethical and social aspects », 55th Congress of the International Association of Lawyers (UIA), Miami, Florida, November 2, 2011.
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« The Risk and Promises of Pharmacogenomics and Personalized Medicine: An Interdisciplinary Panel Discussion », McGill Research Group on Health and Law, Montreal, Quebec, October 5, 2011.
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« Moving Beyond Commercialization: Strategies to Maximize the Economic and Social Impact of Genomic Research », Genome Canada, GSP Series, Montreal, Quebec, September 27, 2011.
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« The ICGC Data Access Compliance Office: Overview and Update on Current Activities », 5th ICGC Scientific Workshop, Kyoto, Japan, July 11, 2011.
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« Barrières juridiques à l’utilisation de la pharmacogénomique en pratique clinique », ACFAS 2011 - Le droit comme vecteur de la gouvernance en santé? Défis théoriques et enjeux pratiques de l'accès aux soins de santé, Sherbrooke, Québec, 12 mai 2011.
-
« Regulatory Approval of New Vaccinomics Tests: Anticipating the Valley of Death », NYAS Sixth International Conference on Ethical Issues in Biomedical Engineering, New York, E.U., April 3, 2011.
-
« Access to ICGC Controlled Data: The DACO website », 4th ICGC Scientific Workshop, Queensland, Australia, December 2, 2010.
-
« Disclosure of research results: International Context and General Principles », Symposium on the Return of Research Results, Montreal, Quebec, November 17, 2010.
-
« Legal and Ethical Issues of Genomic Testing », Canadian Association of Medical Biochemist/Association des médecins biochimistes du Québec, Annual Congress, Montreal, Quebec, October 19, 2010.
-
« The Tension Between Open Access and Property in Commercial Materials: Exclusivity, Patents, Licensing and Funding. Can Public Goods and Commercial Realities be Reconciled », SCRIPT roundtable workshop, Edinburgh, United Kingdom, September 17, 2010.
-
« Open Biotechnology: Capitalizing on the Human Genome », Summer Institute - Genetics, Ethics and Clinical Translation (Engage) , Egmond aan Zee, North Holland, June 24, 2010.
-
« Assurance et génétique: Enjeux sociaux, éthiques et juridiques », Formation, Sécurité Financière Desjardins, St-Hyacinthe, Québec, 17 juin 2010.
-
« Returning Research Results to Participants on large-scale genomic studies: The Perspective of ICGC », The Biology of Genomes ELSI panel, Cold Spring Harbor, United States, May 13, 2010.
-
« Access to Controlled Data: The Role of ICGC’s Data Access Compliance Office », ELSI and Privacy Task Force Meeting, Canadian Partnership for Tomorrow Project, Montreal, Quebec, April 26, 2010.
-
« Access to ICGC Controlled Data: The DACO Website », ICGC Third Scientific Workshop, Madrid, Spain, March 21, 2010.
-
« Intellectual Property », Health Canada Workshop on Intellectual Property, Ottawa, Ontario, March 9, 2010.
-
« Whole Genome Sequencing in the Research, Translational and Clinical Contexts: Some ELSI’s », Genome Canada Platform Leader's Meeting, Toronto, Ontario, January 26, 2010.
-
« Informed Consent in Pharmacogenomics », Expert Roundtable, Montreal, Quebec, November 26, 2009.
-
« Public Release of Genomic Data: Ethical and Legal Perspectives », Electronic Health Information and Privacy Conference, Ottawa, Ontario, November 19, 2009.
-
« Pistes de solutions pour améliorer la recherche clinique sur le cancer au Québec », Conférence nationale pour vaincre le cancer, Montréal, Québec, 15 mai 2009.
-
« Registration of Clinical Trials and Publication of Results: Towards a More Transparent Era? », Insight Presents: 6th Edition of Clinical Trials in Canada, Montreal, Quebec, April 28, 2009.
-
« En terre étrangère… ou, les aventures d’un juriste au pays de l’éthique de la recherche », Colloque: L'éthique de la recherche est-elle dans une impasse?, Montréal, Québec, 12 mars 2009.
-
« Draft: Points to Consider », Workshop Points to Consider on the commercialization of Genomic Research in Canada, Montreal, Quebec, January 30, 2009.
-
« Open Licences a World of Possibilities », P3G: Public Population Project in Genomics Meeting, Philadelphia, United States, November 10, 2008.
-
« Genetic Information and Insurance: Normative Approaches in the Global Economy », The Co-Construction of Genetics, Health Care and Insurance, Maastricht University, Maastricht, Netherlands, October 22, 2008.
-
« The Potential of Open Source and Collaborative Approaches », Fondation Brocher, Symposium on Access to Medicine, Geneva, Switzerland, September 5, 2008.
-
« Aspects éthiques et réglementaires », Colloque du Réseau québécois de recherche sur l'usage des médicaments, Québec, Québec, 28 mai 2008.
-
« (Dis)interested Science? Commercialization and Conflicts of Interest », Genome Canada Symposium, Navigating the Changing Landscape, Calgary, Alberta, April 29, 2008.
-
« La biotechnologie source ouverte: perspectives et enjeux », Regroupement droits et changement, Québec, Québec, 29 février 2008.
-
« Personalized Medicine in the Clinic: Myth or Reality? », Insight Information, Pharma Innovation in Canada 2008, Toronto, Ontario, January 28, 2008.
-
« Predictivity, Genetic Testing and Insurance: North American Perspective », Seminar of the CDBI (Conseil de l'Europe) on Predictivity, Genetic Tests and Insurance, Strasbourg, France, December 4, 2007.
-
« Open Approaches in Regenerative Medicine », 3rd World Congress on Regenerative Medicine, Leipzig, Germany, October 19, 2007.
-
« Valorisation de la recherche en biotechnologie: Enjeux soulevés par les accords de transfert de matériel », Le droit des médicaments et autres produits de santé - 2ième congrès sur le médicament GEIRSO, Montréal, Québec, 16 octobre 2007.
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« La pharmacogénetique », Le droit des médicaments et autres produits de santé - 2ième congrès sur le médicament, GEIRSO, Montréal, Québec, 15 octobre 2007.
-
« Pharmacogenetics: Ethical and Legal Issues », 3rd Annual Clinical Trials in Canada Presented by Insight Information, Toronto, Ontario, October 1, 2007.
-
« La responsabilité médicale au Québec », XIème séminaire de droit médical, Toulouse, France, 5 juillet 2007.
-
« Commercialization and Open Source », The Commercialization of Biotechnology Research in the XXIst Century, Montreal, Quebec, June 8, 2007.
-
« Informed Consent in Pharmacogenomic Research: A Natural Evolution? », HUGO's 12th Human Genome Meeting, Montreal, Quebec, May 24, 2007.
-
« Open Science and the Future of Biomedicine », Eight Asian Bioethics Conference, Bangkok, Thailand, March 23, 2007.
-
« Pharmacogenomics: Stakeholders and their responsibilities », McGill Human Genetics Student Society Conference on Complex Trait, Montreal, Quebec, November 29, 2006.
-
« What is Intellectual Property », Advanced Foods and Materials Network, Intellectual Property: Food & Materials Research, Montreal, Quebec, November 10, 2006.
-
« Cooperative Strategies for Facilitating the Use of Patented Inventions in Biotechnology: Are They Really Needed? », Closing in on Open Source Conference, Portland, United States, September 29, 2006.
-
« Pharmacogenomics: Emerging Duties », GEIRSO 1st International Conference on Pharmaceutical Drugs, Montreal, Quebec, September 1, 2006.
-
« Regard Éthico Juridique sur la pharmacogénomique perspective et enjeux », XVI World Congress on Medical Law , Toulouse, France, 8 août 2006.
-
« Accès à l’information génétique contenu au dossier médical par les assureurs: développements récents », Séminaire d'actualité de droit médical, Toulouse, France, 10 juin 2006.
-
« Discrimination et exceptionnalisme génétique: implications pour l’éthique de la recherche », Formation continue: Association québécoise des infirmières et infirmiers en recherche clinique, Québec, Québec, 9 juin 2006.
-
« Stratégies de diffusion web, l’exemple de IPGen », 74e congrès de l'ACFAS, Montréal, Québec, 8 mai 2006.
-
Stem Cells - Promise and Peril of Regenerative Medicine, « Stem Cell Patents: European Perspectives », Los Angeles, United States, February 4, 2006.
-
« Genetics and Life Insurance: Recent Developments », Health Law Day, Toronto, Ontario, May 20, 2005.
-
« Conférence citoyenne sur la génomique: une expérience enrichissante », La bioéthique: Modes et lieux de décision, Montréal, Québec, 5 mai 2005.
-
« Comparative Law and Ethics for Biomedical Research: A Modern Necessity », 45th Annual Meeting of the American College of Legal Medicine, San Diego, United States, March 4, 2005.
-
« Propriété Intellectuelle (brevets) », Conférence citoyenne sur le génome - et l'homme créa la génomique, Montréal, Québec, 5 février 2005.
-
« Nouveaux défis éthiques posés à l’entreprise, éthique dans les essais cliniques et performance de l’entreprise », Ville St-Laurent, Québec, 24 novembre 2004.
-
« Assurance vie et génétique, développements récents », Colloque Éthique et génétique: nouveaux défis, dans le cadre de la 2ième journée d'étude des Comités d'éthique de la recherche du Québec (CER), Québec, Québec, 18 novembre 2004.
-
« Pharmacogenomic Research: Confidentiality and Consent », Genome Canada Biotechnology Conference - Pharming the Genome: Implications of Pharmacogenomics for Human Health and Public Policy, Ottawa, Ontario, November 4, 2004.
-
« La pharmacogénomique: Perspectives et enjeux éthico-juridique », Forum, discussions pharmaceutiques de Montréal (Bioéthique et pharmacovigilance) , Ville St-Laurent, Québec, 19 mai 2004.
-
« Ingénierie d’une profession – introduction – statut et condition, droits et responsabilités du chercheur professionnel », 72e congrès de l'ACFAS, Montréal, Québec, 14 mai 2004.
-
« L’accès aux échantillons biologiques et à l’information génétique des patients décédés pour fin de recherche en génétique: perspective québécoise », Séminaire d'actualité de droit médical, Toulouse, France, 7 mai 2004.
-
« Le génome comme outil de recherche? Principaux courant et enjeux nord-américain », IIREB Séminaire d'expert de l'IIREB, Paris, France, 12 décembre 2003.
-
« Breast Cancer and Insurance in Canada: Ethical, Legal, Social Issues Perspectives », Canadian Breast Cancer Alliance - Reason for Hope 2003, Ottawa, Ontario, October 25, 2003.
-
« La protection de la confidentialité de l’information dans la recherche en pharmacogénomique », Séminaire d'actualité en droit médical - Droit et éthique de la recherche médicale, Toulouse, France, 6 mai 2003.
-
« Les enjeux soulevés par la brevetabilité sur le vivant », Développement et paix, Brossard, Québec, 11 avril 2003.
-
« Demystifying the Controversy Surrounding Predictive Genetic Tests and Life Insurance », Second Annual InHeRIT BRCA's Meeting - Joint Conference on Inherited Susceptibility to Breast and Ovarian Cancer, Quebec, Quebec, November 24, 2002.
-
« The Positive Impacts of Genetic Testing on Life Insurance Underwriting? », Precedent & Innovation, Health Law in the 21st Century, Edmonton, Alberta, September 27, 2002.
-
« The Positive Aspects of Predictive Genetic Testing for Cancer on the Life Insurance Underwriting », Association for Politics and the Life Sciences, Annual Meeting, Montreal, Quebec, August 12, 2002.
Teaching Activities
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« Principles of Medical Genetics, HGEN 617 », McGill University, Jan 2023 - Apr 2023.
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« Human Genetics, HGEN 692 », Seasonal Lecturer, McGill University, Sept 2023 - Dec 2023.
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« Human Genetics, HGEN 692 », Seasonal Lecturer, McGill University, Sept 2024 - Dec 2024.
-
« Principles of Medical Genetics, HGEN 617 », Seasonal Lecturer, McGill University, Jan 2024 - Jun 2024 .
-
« Global Health Law: A Primer for Health Students, Practitioners, & Professionals », Seasonal Lecturer, McGill University, Jan 2024 - Jun 2024.
-
« Medical Ethics and Health Law (MEHL) – Transition to Clinical Practice INDS 302 », Seasonal Lecturer, Jan 2024 - Apr 2024.
-
« Genetics in Medicine HGEN 400 », Seasonal Lecturer, McGill University, Jan 2023 - Apr 2023 .
-
« Medical Ethics and Health Law (MEHL) – Transition to Clinical Practice INDS 302 », Seasonal Lecturer, McGill University, Jan 2023 - Apr 2023.
-
« Genetics in Medicine HGEN 400 », Seasonal Lecturer, McGill University, January - April 2022.
-
« Physicianship 4 – Medicine and Society Elective Seminar INDS 420 », Seasonal Lecturer, McGill University, January - April 2022.
-
« Medical Ethics and Health Law (MEHL) – Transition to Clinical Practice INDS 302 », Seasonal Lecturer, McGill University, January - April 2022.
-
« Genomics in Your Future INDS 426 », Seasonal Lecturer, McGill University, January - April 2022.
-
« Principles of Medical Genetics HGEN 617 », Seasonal Lecturer, McGill University, January - April 2022.
-
« Medical Ethics and Health Law (MEHL) – Transition to Clinical Practice INDS 302 », Seasonal Lecturer, McGill University, January - April 2021.
-
« Principles of Medical Genetics HGEN 617 », Seasonal Lecturer, McGill University, January - April 2021.
-
« Physicianship 4 – Medicine and Society Elective Seminar INDS 420 », Seasonal Lecturer, McGill University, January - April 2021.
-
« Genomics in Your Future INDS 426 », Seasonal Lecturer, McGill University, January - April 2021.
-
« Medical Ethics and Health Law (MEHL) – Transition to Clinical Practice INDS 302 », Seasonal Lecturer, McGill University, January - April 2020.
-
« Physicianship 4 – Medicine and Society Elective Seminar INDS 420 », Seasonal Lecturer, McGill University, January - April 2020.
-
« Genomics in Your Future INDS 426 », Seasonal Lecturer, McGill University, January - April 2020.
-
« Principles of Medical Genetics HGEN 617 », Seasonal Lecturer, McGill University, January - April 2020.
-
« Physicianship 4 – Medicine and Society Elective Seminar, INDS 420 », Seasonal Lecturer, McGill University, January - April 2019.
-
« Medical Ethics and Health Law (MEHL) – Transition to Clinical Practice INDS 302 », Seasonal Lecturer, McGill University, January - April 2019.
-
« Health Privacy and Confidentiality in the 21st Century », Seasonal Lecturer, McGill University, January - April 2019.
-
« Genomics in Your Future, INDS 426 », Seasonal Lecturer, McGill University, January - April 2019.
-
« Principles of Medical Genetics, HGEN 617 », Seasonal Lecturer, McGill University, January - April 2019.
-
« Topics on the Human Genome BIOL 568-3001 », Seasonal Lecturer, McGill University, January - April 2019.
-
« Principles of Medical Genetics, HGEN 617 », Seasonal Lecturer, McGill University, January - April 2018.
-
« Genetics in Medicine HGEN 400 », Seasonal Lecturer, McGill University, January - April 2018.
-
« Topics on the Human Genome BIOL 568-3001 », Seasonal Lecturer, McGill University, January - April 2018.
-
« Principles of Medical Genetics HGEN 617 », Seasonal Lecturer, McGill University, January - April 2017.
-
« Inherited Cancer Syndromes HGEN 690 », Seasonal Lecturer, McGill University , January - April 2017.
-
« Genetics in Medicine HGEN 400 », Seasonal Lecturer, McGill University, January - April 2017.
-
« Topics on the Human Genome BIOL 568-3001 », Seasonal Lecturer, McGill University, January - April 2017.
-
« Topics on the Human Genome BIOL 568-3001 », Seasonal Lecturer, McGill University, January - April 2016.
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« Principles of Medical Genetics, HGEN 617 », Seasonal Lecturer, McGill University, January - April 2016.
-
« Research Fundamentals I, INDS 123 », Seasonal Lecturer, McGill University, September 2015 - June 2016.
-
« Topics on the Human Genome BIOL 568-3001 », Seasonal Lecturer, McGill University, January - April 2015.
-
« Neuroethics NSCI 300-6902 », Seasonal Lecturer, McGill University, January - April 2015.
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« Research Fundamentals I, INDS 123 », Seasonal Lecturer, McGill University, September 2014 - June 2015.
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« Topics on the Human Genome BIOL 568-3001 », Seasonal Lecturer, McGill University, January - April 2014.
-
« Neuroethics NSCI 300-6902 », Seasonal Lecturer, McGill University, January - April 2014.
-
« Genomics, Bioethics and Public Policy (Commercialization and Genomics) », Lecturer, University of Toronto, Genomics, 3hours , February, 12 2013.
Knowledge Transfer Activities
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Jessica Hamzelou, « “Why we need safeguards against genetic discrimination” », Interviewed by MIT Technology Review, July 19, 2024.
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« et l’homme créa la génomique », Participation to a citizen conference, Montreal Science Centre, Feb. 5, 2005.
-
« Protection and sharing of health data at the time of electronic health records and cloud computing », Radio Interview on CHOQ FM Toronto, Guillaume Touzel Bond, Oct. 29, 2015.
-
« You look good in those genes », Canadian communication and knowledge transfer website RESEARCH2REALITY on the topic of DTC-GT, April 12, 2017.
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Dr. Nicole Rusk, « Sharing epigenomes globally », Editorial piece published in Nature Methods in March 2018, Feb. 8, 2018.
-
« Participation à une Table Ronde », Modifications génétiques: humanité à deux vitesses?, au musée de la civilisation à Québec, Nov. 28th, 2019.
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Martin Drainville, « bioethics and the refusal to wear a mask », Radio Interview by Martin Drainville, 98.5fm, Oct. 5th, 2020.
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Sharon Kirbey, « I think it’s a dangerous idea: The case for and against domestic vaccine passports », Interview on COVID vaccine passport for CBC News | The National, July 14th, 2021.
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« Interviewed for Sequencing the Crisis: How genomics morphed from a COVID-19 research tool to a critical part of the pandemic response », Public Policy Forum, Oct. 25, 2021.
-
« WHO consultation on WHO principles for human genome access », use and sharing, Geneva, Switzerland, Mar. 4-5 2024.
-
« The Centre of Genomics and Policy (CGP) and the Genetics Discrimination Observatory (GDO) », Presented at the Canadian Coalition for Global Health Research (CCGHR) Global Health Networking Night 2021, Feb. 2nd, 2021.
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« I think it’s a dangerous idea’: The case for and against domestic vaccine passports », Interview on COVID vaccine passport for CBC News | The National by Sharon Kirbey, July 15, 2021.
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« Sequencing the Crisis: How genomics morphed from a COVID-19 research tool to a critical part of the pandemic response », Interviewed for Public Policy Forum, Oct. 25, 2021.
-
« In genetic arms race with COVID-19 variants, Canada’s labs fight for better ways to share findings with each other and the world », Interviewed for The Globe and Mail, Nov. 25, 2021 .
-
« Genomic data sharing for pandemics preparedness », Presented to Deputy Minister Stephen Lucas and variant of concern leadership group, Sept 9, 2022.
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« Increasing diversity in genomic research can deliver better health outcomes for all Canadians », Interviewed for McGill Reporter, Oct. 28, 2022.
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« Panel discussion: the Canadian legal landscape and impact on genetic », Presented at the UBC Genetic Counselling Continuing Ed series, March 1, 2023 .
-
« Panel discussion: The Future of Medicine: Beyond mRNA vaccines », Presented at RNA & the Future of Medicine, Jun. 1, 2023.
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« The ethical, social and policy issues of genetics », Interview on Double-Stranded by Mike Kazemi, Jun. 21, 2023.
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« Interview on genetic test and insurance », Radio-Canada, Mauricie, Centre du Québec, Jan 31, 2024.
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« Interview on genetic test and insurance », CBC Montreal radio, Host: Samantha Marandola, Feb 6, 2024.
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« Interview on genetic test, the GNDA and insurance », Canadian Press, Samira Ait Kaci Ali, Feb 18th 2024.
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« WHO principles for human genome access, use and sharing », WHO consultation, Geneva, Switzerland, Mar. 4-5 2024.
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« Quand la science et l’éthique se croisent, ça donne la bioéthique! », Entrevue pour l’émission de radio CL’Hebdo, Sujet : Quand la science et l'éthique se croisent, ça donne la bioéthique!, 7 March 2019 .
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« Interviewed for The Globe and Mail », In genetic arms race with COVID-19 variants, Canada’s labs fight for better ways to share findings with each other and the world, 25 November 2021.
-
« Interviewed for the Public Policy Forum », Interviewed for Sequencing the Crisis: How genomics morphed from a COVID-19 research tool to a critical part of the pandemic response, 25 Oct 2021.
-
« The Centre of Genomics and Policy (CGP) and The Genetics Discrimination Observatory (GDO) », Presented at the Canadian Coalition for Global Health Research (CCGHR) Global Health Networking Night 2021 , 2 February 2021.
-
« Interviewed for La Voix de l’Est », Interview by Jean-Benoit Legault on bioethics in the COVID context, 20 September 2020.
-
« Interviewed for 98.5 FM », Radio Interview by Martin Drainville, 98.5fm, "On COVID, bioethics and the refusal to wear a mask", 5 October 2020.
-
« What You Need To Know Before Taking a Genetic Test », Interviewed by Miriam Pinkesz for Top Class Actions Canada
, 30 October 2020.
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« Interviewed for CBC News | The National », Interview on COVID vaccine passport, “‘I think it's a dangerous idea’: The case for and against domestic vaccine passports” by Sharon Kirbey , 14 July 2021.
-
« L’émission les francs-tireurs », Participation à l’émission les francs-tireurs avec Benoit Dutrizac (Télévision Télé-Québec), January 15th, 2020.
-
« Modifications génétiques: humanité à deux vitesses? », Participation à une Table Ronde (Modifications génétiques: humanité à deux vitesses?) au musée de la civilisation à Québec , Québec , November 28th, 2019.
-
« Curium Science techno et société », Interviewed by Annie Labrecque for Curium Science techno et société December 2019 issue pp.30-32 (Direct to consumer genetic tests), October 24th, 2019.
-
« The implications of the new biomarkers identified by Deelen et al. », Interviewed on Radio-Canada by P enelope Mcquade on the implications of the new biomarkers identified by Deelen et al. , Montreal, Canada, August 29th, 2019.
-
« Taking stock of the implications of genomic advances », Interviewed by Patrick McDonagh for the McGill News Alumni Magazine., August, 14 2019.
-
« The ethics of gene editing », Interviewed on CJMF-FM93 by Elisabeth Crête , June 25th, 2019.
-
« Le citoyen et ses renseignements génétiques: pour qui et pourquoi? », Participation to a Café Scientifique , Saint Houblon, Montréal, June 20th, 2019.
-
« Interviewed for the Herald Monthly newspaper », Interviewed by Shirley Chan for the Herald Monthly newspaper on CRISPR Cas9 gene editing in China , December 6, 2018.
-
« Interviewed for The Link », Interviewed by Victor Depois The Link, Genetic Discrimination: A Reality for Both Residents and Immigrants., November 6, 2018.
-
« Was in the cast of ‘A User’s Guide to Cheating Death’ », Was in the cast of ‘A User's Guide to Cheating Death’ (Season 1, Episode 3) Playing on VisionTV and Netflix., January 15, 2018.
-
« Interviewed for the Canada Border Services Agency (CBSA) », Interviewed by Brian Owens on the topic of ‘Use of direct-to-consumer genetic tests and ancestry websites by the Canada Border Services Agency (CBSA)’, interview published in Chemistry World on 31st August 2018., August 28, 2018.
-
« Interviewed for le Devoir », Interviewed by Hélène Buzzeti of the Journal le Devoir on the Genetic Discrimination Observatory project., Montreal
, August 8, 2018.
-
« Interviewed for La Presse », Interviewed by Alexis Riopel of the Journal La Presse on the commercialization of genetic data by private genetic testing companies., Montreal, February 21, 2018.
-
« Interviewed for Nature Methods Editorial », Interviewed by Dr. Nicole Rusk for an Editorial piece published in Nature Methods in March 2018, ''Sharing epigenomes globally'' 15(3): 151., Montreal, February 8, 2018.
-
« Short Video on Genetic Discrimination (Réseau Rose) », Filmed for a public short video on the topic of genetic discrimination, to be featured on the website of the Réseau Rose: https://www.reseaurose.ca/., Montreal, November 24, 2017.
-
« Interviewed for Le Journal de l’Assurance », Interviewed by Denis Méthot for Le Journal de l'Assurance on the topic of genetic discrimination and insurance., Montreal, November 24, 2017.
-
« Interview for Le Devoir on topic of Cloud Computing Ethical and Legal Issues », Interviewed by Miriane Demers-Lemay for le Devoir on the topic of Cloud Computing Ethical and Legal Issues, Montreal, October 16, 2017.
-
« Genetic Discrimination », Presentation on Genetic Discrimination at a scientific coffee event organized by Genome Quebec (Animation Jean-François Cliche, Le Soleil)., Montreal, October 5, 2017.
-
« Whole genome sequencing of healthy adults », Interviewed by Aggie Mika for the Scientist. Piece published on June 27, 2017., June 26, 2017.
-
« DTC-GT », Interviewed by Canadian communication and knowledge transfer website RESEARCH2REALITY. The interview was published on April 13, in an article entitled "You look good in those genes"., April 12, 2017.
-
« DTC-GT and whole genome sequencing », Interviewed by Ruth Williams of The Scientist - article published on the same day., March 21, 2017.
-
« Towards a Data Intensive Canadian Health Ecosystem: Opportunities and Challenges », Presentation to McGill's Medical Ethics Student's Society (MESS) , Montreal, 13 March 2017.
-
« Bill S-201 to prevent genetic discrimination (Radio-Canada) », Participation to the Radio-Canada program, midi info, host: Michel C. Aguer, 10 March 2017.
-
« Bill S-201 to prevent genetic discrimination (CBC Radio) », Participation to the CBC radio program, the BC Almanac, host: Michelle Eliot, 9 March 2017.
-
« Genetic Discrimination (Québec Science) », Entrevue pour la revue Québec Science avec Mélissa Guillemette, 6 March 2017.
-
« Genetic Discrimination and Bill S-201 (ICI Radio-Canada) », Participation to the radio program Medium Large, on ICI Radio-Canada Première (hosted by Catherine Perrin), 28 November 2016.
-
« Discussed with deputies of the province of Quebec and presented a poster on normative approaches to address genetic discrimination », Participation to a special event organized by Genome Quebec and the RSSPQ at the National Assembly of Quebec (L’ADN à l’assemblé nationale) , 19 October 2016.
-
« Genetic Discrimination (Interview with Fatima Syed; Canadian Magazine ‘The Walrus’) », Interview with Fatima Syed for an article on genetic discrimination in the Canadian Magazine 'The Walrus', 14 October 2016.
-
« Genetic Discrimination (Radio-Canada) », Radio Interview on Radio-Canada Première on the topic of genetic discrimination, L’heure de pointe with Jean-Pierre Girard. , 30 August 2016.
-
« Genetic Discrimination (Radio-Canada) », Participation to the televised show on the topic of genetic discrimination, Canada’s Genetic Database, Radio-Canada, Le Téléjournal Saguenay, Lac-St-Jean., 20 August 2016.
-
« Bill S-201 moves forward to the House of Commons », Interview for the Radio of Radio-Canada (Olivier Lefebvre) Bill S-201 moves forward to the House of Commons., 5 April 2016.
-
« “Cómo reducir las visitas al médico con un algoritmo matemático” », Interview published in Spanish national journal El Pais “Cómo reducir las visitas al médico con un algoritmo matemático” Miguel Angel Criado , 17 March 2016.
-
« Protection and sharing of health and data at the time of electronic health records and cloud computing », Radio Interview on CHOQ FM Toronto, Guillaume Touzel Bond, Toronto, October 29, 2015.
-
« Genetic Discrimination », Radio Interview on Radio-Canada Toronto (L’heure de pointe with Line Boily) on the topic of genetic discrimination., March 30, 2015.
-
« An Act to prohibit and prevent genetic discrimination », Testified as an expert witness in front of the Senate Standing Committee on Human Rights on Bill S-201, An Act to prohibit and prevent genetic discrimination , December 10, 2014.
-
« Genetic Discrimination », Participation to the radio program "The 180 with Jim Brown" on CBS radio on the topic of genetic discrimination, March 25, 2014.
-
« It’s yet to be shown that discrimination exists in ‘Room for Debate’ », Publication of an editorial piece on law, genetics and life insurance in the New York Times (It’s yet to be shown that discrimination exists in Room for Debate), April 15, 2013.
-
« Les implications légales et éthiques de la génomiques », Participation to the radio program 'Les samedis du monde', broadcasted on the first chain of Radio-Canada: Les implications légales et éthiques de la génomiques, February 2, 2013.
-
« Editorial piece on law, genetics and life insurance », Publication of an editorial piece on law, genetics and life insurance in the 'Globe and Mail', December 10, 2012.
-
« Exhibit on the ethical aspects of genetic research for the ‘Montreal Science Centre’ », Expert consultant on an exhibit on the ethical aspects of genetic research for the 'Montreal Science Centre', Montreal, July 20, 2012.
-
« ‘Planète Terre diffusé sur le Canal Savoir: Un nouveau droit international à la santé?’ », Participation to the televised show: Planète Terre diffusé sur le Canal Savoir: Un nouveau droit international à la santé?, 8 janvier 2010.
-
« Pharmacogenetics », Participation to two public activities of an information campaign on pharmacogenetics (coverage in The Gazette, January 14th, 2009), January/August 2009.
-
« « et l’homme créa la génomique » », Participation to a citizen conference, « et l'homme créa la génomique », 'Montreal Science Center', Montreal, 5 février 2005.
-
« Life insurance and genetic testing », Participation to the televised show 'Enjeux' broadcasted on Radio-Canada on life insurance and genetic testing, November 23, 2004.