Publications 2023
Peer Reviewed Articles
-
Rothstein M, […] Joly Y, et al. “Concordance of International Regulation of Pediatric Health Research” 260:113524 (2023) The Journal of Pediatrics, 1-10.
-
Knoppers BM, Chase S, Joly Y, Zawati M and Thorogood A, “Responsible Processing and Sharing of Genomic Data: Bringing Health Technologies Industries to the Table”, 23:11(2023) The American Journal of Bioethics, 33-35.
-
Dauge A, Joly Y, et al. “General medical practitioners acting as geneticists, a risky business?” 28:1 (2023) Lex Electronica, 152-171
-
Moreno P.G, Knoppers T, Zawati MH, Lang M, Knoppers B.M, Wolfson M, Nabi H, Dorval M, Simard J. and Joly Y, “Regulating cancer risk prediction: legal considerations and stakeholder perspectives on the Canadian context” (2023) Human Genetics.
-
Huerne K, Jackson SS, Lall R, Palmour N, Berner AM, Dupras C, Joly Y. “Studies in Cancer Epigenetics through a Sex and Gendered Lens: A Comprehensive Scoping Review” 15: 4207 (2023) Cancers.
-
Puscas M, […] Joly Y, et al. “Rare diseases and space health: optimizing synergies from scientific questions to care” 8:58(2022) npj Microgravity, 1-10.
Book Chapters
-
Joly Y, Avard D, ‘’Pharmacogenomics: Ethical, Legal, and Social Issues’’ In The Road from Nanomedicine to Precision Medicine, volume 4 of the Pan Stanford series on Nanomedicine, Mousa SA, Bawa R, Audette GF, eds. (Jenny Standford Publishing), 2020, 791-828.
Reports and other publications
-
Joly Y, “Genetic Discrimination and the Ghost Of Future Past” 360info, 28 February 2023
-
D’Amato M.E., Joly Y, Lynch V, Machado H, Scudder N, Zieger M, ‘’Ethical Considerations for Forensic Genetic Frequency Databases’’, First Report By The Forensic Databases Advisory Board (FDAB), 2023.
-
REWS (including Y. Joly), “Framework for Involving and Engaging Participants, Patients and Publics in Genomics Research and Health Implementation” (2021)
-
REWS DACReS working group (including Y. Joly), “Data Access Committee Review Standards (DACReS) Policy” (2021)
-
REWS “Genetic Discrimination working group (including Y. Joly), Genetic Discrimination: Implications for Data Sharing Projects” (GeDI) (2022)
-
Joly Y, “Global Governance of Genomic Data: A Dynamic Ecosystem to Promote the Development of Precision Medicine” (2022) The Canadian Science Policy Magazine.